Daisy,
I'm sorry you feel the way you do, but I totally understand. As you well know, this board has been going on for quite some time and there are many members on here who are very loyal to each other. Now before anyone bites my head off, I don't necessarily mean it in a bad way. But, it is true.
Daisy, when I first came here, I posted to every single post that was by Roxy, or about her. I NEVER got any type of response from her, even when I specifically posted that I was wishing her well, etc. At first it irked me, then I figured that she has better things to do, so I moved on. Now I read, but never post to her.
One more thing, I agree this board should be about RA, symptoms, treatments, etc. However, we are all so much more. We are humans, mothers, daughters, wives, employees, etc. I think we should be able to post about other things. Think of it this way....if Roxy didn't get the responses she gets, she wouldn't post like she does.
Phats
Hi Phats,
I don't remember if Roxy has ever responded to me either but I still enjoy reading her posts as I do yours. I like reading about her life. I like reading about everyone's lives. I guess it makes me feel like I have a bit of a connection with some of the people here.
That connection is what makes a support group miles2go. That is why we are here. Lets keep connecting.
Miles,
I agree, this board would be so boring w/o being able to be human and talking about other things.
I do enjoy hearing about others, what makes them happy, sad, etc. I guess the last couple of months have really jadded some of us. It seems like it is so much drama, all the time. I'm sure things will even out soon.
Have a great day!
Phats
You are exactly right, Pammy. We won't let anyone stop us! And Phats, I know, calm is good, too!
You all have a wonderful day!
I read all of your posts. If I do not respond to you specifically it is because it is hard for me to remember who said what and it feels wierd listing every name that responds to your posts. I did not know I was offending anyone. Miles, I know I told you I love Kahil Gibran. Sometimes I don't understand what the message is and I don't want to respond and offend anyone. Geeeeeeeesh - I will try harder to respond to my responses. Truth is - my concentration sux - the pain meds and sometimes posting and remembering all the posts is very difficult.Good Grief!!dont worry rox i still love ya :D im sorry people are being idiots yes i said it YALL ARE BEING IDIOTS (well only those that are being mean and rude)
Ummm, excuse me now and then? My post doesn't say anything mean towards or about Roxy. So, where is this coming from? I just stated what happened to me and it is a fact.
In fact, I'm encouraging more posts about ourselves.
Phats
Hey guys! we all know that we mean well to each other.
Let's not get this going again, okay? I respond to people a lot. It doesn't offend me if they do not call me by name when writing again. I know they have read what I have to say.
I honestly don't think Phatgirl meant anything offensive. At least I hope not. We don't have to see our names in a post to know they have been read. She even stated that she enjoys Roxy's posts as, I think, we all do.
I feel very close to a lot of people on this board. They don't need to respond directly to me for me to care deeply about them.
Roxy, you know that you are someone I care about very much. And, I, too, get angry with the people who have been picking on you, when what you need now is the support from everyone on this board.
Of course, some are going to get closer to each other! That's just human nature. But we aren't 12 years old. That doesn't mean we can't all care about each other.
Please don't let this get started again! I need you guys!
Hugs to all,
Nini
I think I've had maybe two posts actually responded to in my time on the board. I don't post a lot, but I have received (read) lots of great advice on daily living with this disease. I don't necessarily come here to make friends...I've been blessed with many who I see often on a real life basis. I have also offered some of my own discoveries for making life easier with RA...I have no idea if any of them have been helpful...maybe they have, and the recipients don't feel the need to respond. Maybe nobody reads my posts...but it still feels good to offer ideas that have been helpful to me. This board is a blessing in more than an informative way for some, and that is wonderful. Some maybe are so advanced in their disease that they are limited to the forum for their friendships and relationships because they are restricted to their homes. If this forum fulfills that need, then it is truly a blessing. My advice to those who feel slighted is: offer more about yourselves and offer some new threads of your own, and stop looking to others here for your daily affirmation....they are suffering just like you are...and probably more-so. If you are able to...go out and make or be with friends who can be tangible forces in your life, and don't expect more from this site than it was originally intended to be....a forum about living with arthritis.
now...I wonder if anyone will read or respond to this?
That was good Claire.Have to agree with you Clair and now you have twice as many responses.
Deidre Thanks, Deidre.I read posts everyday but can rarely respond as my hands hurt so much. I also have memory issues and it is hard to remember everything has said and done. It doesn't mean I don't read all the responses to me (and everyone else for that matter) it just means my hands hurt too much some days to post much if anything!
I apologize for not listing every name that has posted on this thread but I did want to say Michele - that is how it is for me. I am glad you understand and Nini - You have always made me feel your love - it is people like you that keep all of us coming back and Claire - to respond to your message
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