I posted this morning about how I felt this board was not quite as dedicated to disease topics. I in no means meant that we could not be human beings. Everyone loses a pet, has a grandbaby, buys a new home, has personal trials. We should feel safe in sharing this. If several people have become good friends then maybe they should use the PM for their more personal use.
The problem to me seems to be when someone posts several times a day, about their most personal life. Everything in their life. It is like watching a soap opera. Yes some people love to read it just like they love television dramas. It can make them feel better about their lives sometimes and unfortuneatly sometimes are very pathetic. If someone wants to follow this drama it belongs on another space, like MY Space. Com
I am being called nasty because I asked Roxy 2 questions. I am not a nasty person, I am very loving and guess what I am surrounded by people I love and love me, so no I don't need this board for love and I am not unhappy. I have been through hard times that would make good reading too, as every person on the board has. I would like to thank all the people that have PMed me giving me their support and thanking me for being brave enough to question this.
I don't think anyone feels that sharing items about your personal life is wrong. BUT there is a difference between that and sharing ALL the details of your life on this board . There has got to be a better place for people to follow Roxy's Life.
I have read all about finding her dream home, trying to get a mortgage, getting turned down for a mortage, DAILY updates on the mortgage, DAILY updates on losing the "dream home", Traveling to find another home, all the trips, DAILY posting on the new home. DAILY postings on moving, DAILY postings on missing Brett, the love of her life, Daily postings on Kelseys moving home, DAILY Postings on Kelseys adjustment and problems at home, DAILY Postings about how here extended family is terrible to her, (please just appreciate you only live 45 min. from them, some of us don't have the same luxury), DAILY POSTINGS of applying for SSDI ( I fund the best help with on another board that really posts about RA, I was approved within 2 months)DAILY Postings about Colton coming and how she of course would be so much better for him than anyone else; DAILY POSTINGs about how damaged and how much pain she is in from her "Aggressive Severe RA" DAILY POSTINGS on how she only has 0 dollars to he rname and needs food; DAILY POSTINGS on everything bad Brett does and says to her.......... I could go on and on with about 50 other topics. I am sorry but there is NO ONE else that posts like this and I know she started a MYSPACE , because of course she posted that, so why don't we just move the Life and Times of Roxy over to that where it belongs and you can give her your support and the attention she craves.
Sorry I am venting, I am soooo angry the names I have been called for my opinion. And yes Roxy has been kicked off another board because they felt it was not appropriate for that board too.
There are several good boards out there, it is too bad this can't be one of them. And yes you have alienated a lot of the people that you people seem to so care about. You all talk about people that don't agree with you as being terrible. You all seem to be very "nasty" also because you don't agree with me. An of course you are personally attacking Poor Daisy, maybe I have just as much on my plate as Poor Roxy.
Karen
Daisy, Please try to keep the comments from some of these people in perspective. I, for one, don't see the harm in the questions you asked. Don't let the opionions of a few stop you from voicing your opionions.Thank you, I have had sooo much support through the PMs too. I appreciate it. Lets help each other live a good full life with RA!!!
You know I have felt that way at times. Hell; I've told Roxy as much too if you've followed this drama from other boards. I think other's might agree as well.....but we didn't feel the need to explode about the issue the same week her health has been so shaky and we all know it.
I tend to keep about 85% of my real life out of all this. I'm just not real big on that myself....although at times I'll talk about something else in my life like my job....or sometimes my children; and let's not forget "Mr. Lovie". It doesn't mean I don't have friends and family I love right here in my real life; it just means they don't quite understand like some people here do about certain things like RA.
At other boards I visit on a regular basis there are areas that are for posting off topic stuff. Maybe we could use another area of the forum as that?
I think many here like sharing daily drama and other's like myself like to pick and choose. I think at the very least there should be a standard on the topic line that says "OT" off topic or something so those that seem so bothered by the other stuff can tell what's what.
Thank you Lovie,
I really feel there is a difference between sharing off topics ( I think a lot of our life is affected by RA) and using this forum to publish a chronicle of your personal life. I really never meant to attack anyone and felt asking those 2 questions was not an attack on someone that openly shared every facet of their life. It is so sad this board has turned into this over the last year. We all need the support of each other with this disease.
Agreed.AMEN KAREN, I COULDN'T HAVE SAID IT BETTER!!!!!!!!!
PHATS
Ok really why does it matter where Roxy posts about her daily life? She is comfortable posting that stuff here because we are her FRIENDS. If those of you that dont want to hear about it dont read her posts, simple as that. Nobody is making you read about her daily life. I like reading it, I am her friend and i like hearing about what is going on in her life. Why should we have to post about or daily life on another board when we are comfortable posting it here just because a few people dont like it? Daisy, I dont know what I would have done if I didnt find this board. I remember last year frantically trying to get info on RA. I was so happy to come across this board. It was all so scarey to me and honestly still is at times.Lovie,
I saw on another post you questioned my being on the board for about 4 years. I am not a ghost writer have no idea what that is. I had trouble twice in that time with my username and password not working. I can't remember what my first one was, probably kmsulliv, but my second was time2go, and now Daisy. I really only changed it because of login trouble. YIKES I feel really misunderstood.
Daisy, If you are so unhappy with this forum, why do you even bother with it?
I see that you have all of 34 posts. Does that really entitle you to try to dictate what is discussed here?
I don't know Roxy personally, but have come to care about her, and others, very much through this forum. Good grief! Aren't we supposed to be here for each other?
I was going to start a thread about an upcoming surgery, but I sure don't want to get slammed about being too "personal".
Can't we just enjoy each other's "company" and pass over the threads that we are not interested in?
Just felt the need to finally express my humble opinion.
Nini
Karen,
I apologize. When I was young my mother told me time after time to "think before you speak". I still haven't learned my lesson. I tend to get emotionally involved when I shouldn't. Open mouth, insert foot. That's me.
After reading your post I feel very badly about myself. You sound like a wonderful person and I made you feel bad and I'm sorry. I hope you keep coming back here because I'm sure you have much to offer.
This is off the subject but did you notice how close your old user name was to mine? And when I had trouble a few weeks ago logging on and picked a new name for a few days it was daisy5 or something. Daisy's are my favorite flower. I'm tired, therefore loopy.
Dear dear Daisy, If you are going to recall everything I have said please be accurate. I love my family DEARLY. I have NEVER said my family is terrible. I think they are wonderful. I love being so close to them and I love going to family gatherings. I have said they do not understand RA. Also, I don't think I have ever mentioned how much money I have but I have expressed concern over the financial burden that RA has put me in.
I find it interesting that you are so offended by my posts. You don't have to read them. I come here everyday to share my life while I have coffee. I have loved it. It is like having a best friend next door. You know it is surprising you do not attack Joonie. She talks about the smallest details in her life.
I never was "kicked off" another board. I got in a fight with Joonie and left voluntarily. Then when Joonie came back here, I welcomed her as she was obviously needing support.
I think you have a personal vendetta against me. I believe everything in my life is effected by RA. I also know that the precious times I have not been flaring, I still come here and support others. You keep questioning the severity of my RA. Why? I find you suspicious. I think you are someone from the old board that has nothing better to do than to come here and attack me.
If you have received all these pms in support of your position, ask your supporters to pm me. If there is any truth to what you are saying, I will leave AI. I am not interested in MY SPACE. My daily "blog" is always RA related as far as I am concerned.
There is something very evil about a person who would attack someone with a vengence like you have attacked me, five days after I had a stroke. Something is very strange about your motives.
Miles2Go - I cannot help but ask. What in Daisy's post made her sound like a wonderful person. If her post is what a wonderful person is- I embrace RA and the isolation it brings.
Roxy,
No vendetta against you, and no conspiracy theory either. I am just a very happy 50 year old women, that is very tired of you using this board to chronicle every aspect of your life. I just get the feeling from your posts that you always want to stress how sick you are. You seem to love the sympathy and attention you can recieve. But that is my opinion. I am really surprised after your stroke that you are able to post so much. If you would like I can go back through your posts and point out when you have said exactly how much money you had. But it just is not worth the effort to me. I was not attacking you before when I asked those questions I was very concerned you were not getting good enough care , but I am now because you have attacked me.
You share all the details of your life with this board, maybe not a good idea because anyone with internet access can view this, it is unsecured. If you share your life so openly then why not answer the questions and why get so defensive?? Some one also posed the question to you in another post about why your brother had all of yours and Bretts money and Brett had called him for it. Funny you ignored and never answered that. I am sure you are not hiding funds to recieve state benefits because you are 110% honest.
Roxy, I did nothing but ask 2 questions to someone that is always open and honest. I got attacked by you and others. This is an RA board and this whole post I just had with you had nothing to do qith RA!!!
My philosophy on any board has always been to not open or read any thread that is not of interest to me.
So...if you do not like or appreciate someone sharing their lives experiences, don't open those threads. People should be free to post whatever they want to post.
I just do not understand all this drama and attacks on other people.
Daisy - you say you are "just a very happy 50 year old women" - do you have three bodies???? I rather think you might!!!
Roxy,
I'm only replying to this because you asked me. Re-reading back some of Daisy's posts, she sounds like a regular woman with RA, just like the rest of us. She didn't word her post the way I thought she should have, but a lot of us don't word our posts the way we want and they are not taken in a way we want them to be. I don't think she meant any ill will toward you. I think she's trying to be helpful, but I don't think you want to hear that. I've defended you with every post I've written about you, but I think this is going to be another of mine that will be screwed up by somebody so, I'm finished with it.
Kiwilass, I am sorry I am a woman, mother, wife, whatever.... I have trouble with my fingers and typing and sometimes have typos. Yes you are right sometimes I feel like I have 3 bodies, but this 1 is enough. did pointing out mu typo make you feel better?? I hope so.
Miles2go,
Thank you for your comments and you are right. I am just a regular person with RA trying to do my best. I am sitting here crying my eyes out. All I did was care and ask some questions and I have been called names and insulted . It seems like people like to jump on the bandwagon and start calling people names and insulting them without even reading all the posts. Well, thnks again