Worried about my "baby" | Arthritis Information

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So my baby (she is 12 lol) has popped up with some very swollen, painful, and red hands in the past 2 days. She is tired, laying around on her Spring Break, popping fevers out of the blue, and just plain out not herself.  There is something up.   I have a doc appt. for her on Thursday morning with our PCP.  My oldest daughter already has RA.  Now I am frightened that my baby does too.  My oldest daughter developed it as an adult which runs true to how it pops up in our family.  My maternal side of the family is affected with it.  My mom, my gramma, my uncle, and so on. 

I do have a top notch rheumy doc if it does come to that.  he will treat her.  I just hope and pray that it does not. 

This is so scary.  I don't want her to have this. 

Gramma - that just has to be sooo scary for you - and of course, not at all pleasant for your baby.   She must be harbouring some scary thoughts as well.  I hope that your Dr. appt. goes well and you can get some happy answers.

Positive vibes and prayers your way.

Take Care

Liz, sorry to hear this.  Keep us posted on how it goes.  I'll be praying for you both.

Gramma,

You and your daughter are in my thoughts.  Please keep us posted.  I pray that she will be o.k.

Phats

Thank you everyone for your kind words and thoughts.  I really do appreciate them.  It is nice to know that I have 2 great places to go and great people at each of them to support me and help me thru this. 

She has had some scary thoughts and lots of questions.  her first one was...am I going to have to shots now like you do Mom if I have RA.  She most likely won't and I told her that.  Her next one was...can I still play sports.  I told her as long as she feels ok she sure can.  Then she asked me...do I get to see your hot rheumy doc lol.  Oy vey, puberty and girls!!!! 

I am trying to set a good example for her of what you can do despite having RA.  Like even tho today I feel like I have been hit by a truck (it's weather related) I still got up and showered and moved around.  Picked up the house...did dinner dishes etc.  Took care of paying a bill etc. 

Being a mom you of course always think the worse when it comes your kids and hope for the best.  I will not sleep well until I have answers.  I know that for sure.  I am snappy at everyone.  Danny told me to quit being like a turtle yesterday.  All snappy lol.  He of course is handling in this in his own way.  Mostly he just says we have to wait to see what the doc says.  There are times I wish I could me more like him.  Not all weepy, nervous, snappy, fatigued, etc.  I know he cares about all this and is scared too.  I think that is why he isnt saying too much.  I just want it to be Thursday at 9am. 

Sorry, to hear it Liz. I hope it is not RA, and something else. Please do keep us posted.

Huggs

Hope she'll be ok. I'll look for your updates later this week.

Gramma,

You know I hope every thing goes well, but Please let us know how it goes!!! Your daughter sounds like a brave little girl, I hope she is okay!!!

Karen

Oh man, what a bummer. I hope it is just a passing virus. Our children
should not be sick like this. What is going on?Liz, so sorry that your little one is feeling bad too. I hope it is not your fears. We all share them. Julie has bad news from the doc yesterday. Her bulging disc is getting worse and now she's DJD in her lumbar. She's not quite 26 so she's a bit young for the DJD. Then she asked if she could get the RA. She's been awfully sad since. It's not fair that we can pass this on to our kids. But who knew? Gramma......I am praying for your family that everything goes ok on Thursday with your daughter.

Oh man what a bummer.  I'm sorry to hear about Julie and her disc.  What are they going to do for her? 

No, it isn't fair to pass this on to our kids.  I can't wait for gene therapy to become more advanced so we can prevent this.

I think they are going to do surgery. She is scheduled to see the neurosurgon at the Barrows Neurological Center here. I'm scared for her. She already has FM, endometriosis and thyroid problems.

Our girls are not supposed to take our bad qualities. I'll be anxious to know what the doc says about your girl. It's even scarier at such a young age. You just feel like life is cheating them out of everything.

Gramma,

All the best for you and your daughter. Sorry to hear of her symptoms  - keep your chin up as you never know!

Hope all goes really well for you both! Keep us posted.

Nelly

Hi Gramma, this is my worst nightmare, I hope and pray that you have good news, but if it is bad, know that you have a good Dr, many friends here and hopefully new treatments happening all the time to help us all, best of luck, Janie. She is in my thoughts and prayers. Its so tough on little ones to feel so bad. Ginni

Thank you once again everyone.  Tomorrow is the big day.  She is a little nervous about the blood draw, but they are awesome at my docs office.  I never even bruise.  And I bruise if I just look at a needle lol.  She wants all of us to go with her to the appointment.  Even her sister at home that she squabbles with all the time lol.  Our oldest daughter tried to make it up for the appointment, but with the weather the way it was today I told her to stay home and not do the 90 minute drive.  It probably would have taken about 2.5 hours to get up here.  She is with us in spirit tho and the 2 girls have talked a lot on the phone and online the past couple of days.

I will post when I get home from the doc.  Going to be a restless night for all of us.  I am just glad the appointment is early in the morning and we get it done and have time to digest anything the doc says before Danny goes to work in the afternoon. 

Dooooodd she can SOOOOOOOOO talk to me!! I haven't talked to that little twerp in DAYS. It's always her annoying older sibling online........oh wait, I mean you, never mind. HAHAHAHA
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