This is what Danielle's hands presently look like. That is my left hand in the picture.
Save those for the "Before pictures", cause we're gonna see some really good "After pictures", after she gets treatment!
Ohhhhh, poor baby!!!!!!She is a little nervous about returning to school tomorrow. We have been talking a lot about it and she knows to go to her teacher if she has any problems at all.
So far the Naproxen has not touched the swelling and inflammation. I have heard that it can be up to a month to see any difference with it. We are not going to wait that long and only going to give it a couple of weeks before calling for pred. She asked me that question I dreaded so much last night. Can I still be a pilot. I did not lie to her or give her false hope. I told her we will have to see what the future brings at that time. If she takes her meds most likely she will still be able to be a pilot. She has decided on law as a back up if she can not fly and going to specialize in right of the disabled. Whew....I can still hardly keep up with this kid lol. And the JRA has slowed her down some. She came in after only shooting hoops for about 10 minutes. Sigh.
Did the drs say anything about puting her on prednisone? i dont know how that works w/ her having JRA as oposed to RA. Hopefully she gets some reliefLiz- kids bounce back so much easier than us.My son has been on a look at life course for the army but we still havent seen the haemotologist for his bruising yet. we spoke to him honestly about anything that might affect his chances of getting into the army.He is quite open minded to this fact although the army is all he ever wanted. Shannon...for now she is refusing pred. My family doc wanted her on it right away. She did compromise that if the Naproxen doesn't work for her in a couple of weeks she will go on the pred. This kid is so informed about RA meds that I have to let her make her own choices within reason. This is one of them. What a brave little lass. And even wanting to have knowledge of the medications and treatments available to her shows an early maturity.awww look at her hands... is she right handed? because her right hand is worse than her left. Like my right hand is worse than my left.
Is it just her hands that bother her?
Bless her sweet little heart! Big gentle hugs to you both!
I'm so glad you are allowing her to be pro-active in her own treatment. I sure hope the Naproxen works, so she won't need to go on pred. I'm quite sure she's thinking of the side effects of the prednisone.
She sounds like a very intelligent girl, who really wants to know all there is to know about the disease. I know it must be so hard to be up-front with her, but she'll know in a minute if you are not.
I think it is wonderful that she is interested in working with disability law! That shows a lot of compassion. Your sweet girl is thinking of others, too, when she has this new challenge to face.
My thoughts and prayers are with you and your dear Daughter,
Nini
Thanks so much guys. She is a bright little girl and know if I am lying or beating around the bush in the blink of an eye.
Yep, she is right handed. So far it is just her hands and we hope to keep it that way. She does have the fatigue tho. She fell asleep on the way home from Wal Mart today poor kid.
Now's the time to introduce her to the paraffin bath from Walmart. Get that and some lovely fingernail polish and she will have the softest, prettiest hands in school even if they are swollen. When I first had RA, my hands were so bad. I used the bath morning and night for about a year and it greatly improved my ability to use them.