Well all, I'm so sorry I haven't been here more. I'm battling the
flare monster. It's pretty much kicking my butt. Was
feeling better for a bit...then had an allergy attack. Seems the
flare came on rather fast after the allergy attack. Which made
sense to me after I read in my fibro book that allergy attacks can play
a part in fibro flares and that is what is raging in me. I forgot
a simple word like remote last night. and we were watching tapes
of season's end episodes of our fave shows...last night was
CSI:Miami. Eric Roberts guested in it. But at the begining
of the show, all I could say to Gar was this is the ep that that guy
from that show is in. I expected him to know exactly what I was
talking about. Needless to say he looked at me like I was crazy.
Usually if I give him a bit more to go on, he can supply me with the
word, thought etc I am looking for but that was too much of a
stretch. I'm also having problems spelling words today. I
just tried to spell stretch as strach. So needless to say, I
think I need to just veg out some. Tomorrow is grocery day.
Oh joy of joys. I normally like grocery shopping but....not
looking forward to it. Wondering if I can make Gar go....nah
can't do that as he doesn't know what I like when I buy certain things
like shrimp. And veggies.
Anyway, thinking of you all and will try to see if I have more mental capacity later today.
hugs, wayney
Just rest, that's what you need
And for the record; I hate to grocery shop!! My husband and I have all four of our children every other weekend (and mine twice a week in between) and we only shop the week their all home. That buggie is so packed I can't hardly make it around the store. I make my 15 year old son go with me especially when I'm having a rough time. He pushes the buggie then loads and unloads the car for me. It's so helpful!! Even if he does complain about me making him go...he always gets to pick out the good "junk food" so it's really not much of a chore. (Handsome, Spoiled Brat....But I love the big guy) Hang in there Girl, and check in when you're up to it. Hi Lovey,
(handsome and spoiled, I mean) I have to say that cause mine is too!!
Wayney, get better soon! Wayney
I know how you feel, about the mental capacity thing. I have had a many of days like that and just recently yesterday. Hope you get over your flare! June Wayney, everybody needs a veg out day sometime. Today is your turn. Feel better soon. Barbbut I made it thru work today. My little guy is spending the night with a buddy so I can shower and veg in bed tonight with my buddy, "MR HEATING PAD!" He always makes me feel better! Check in with us and let us know how you're doing!!! I'm still alive but I feel like I've been kicked around a few
times. Something's up with us all at my house. Bastian and
I took a 2 hr nap today. He was fussy and this is a child who is
almost never fussy. But today, well all I can compare it to is
the stereotypical terrible twos. He never had that. But the
last few days, it has been whine city. Then Gar came home
exhausted as well. We all headed to bed by a bit after 9
tonight. But, I am still awake at 10:30 for a few odd
reasons. I'm sleepy but when I go to bed, wide awake. I'll
get over tis eventually. Thanks for all the support y'all.
I'm going to try to be on tomorrow but if it was like today, I'll be
reading things and that is it. As for the research...just keep it
in mind and ask me when I'm back to normal. Karen, I am glad you
mentioned the provigil. Hubby wondered why I was happy to read
about your experience with it. I've been curious as to how it has
helped with your fibro. Needless to say, I barely explained to
him other than to say it was basically a rug that is a stimulant.
Not the best of explanations but he was ok with it. I'm hoping to
find out soon what is happening with Gar's insurance. Hopefully
it changes this month and he can either drop me or add me to the BCBS
that he should be switching to. Either way, I can then eventually
see a doc. Been two years and I'm ready to go in asking for what
I know will help me get to a stable place without causing intolerable
side effects. Then I'll consider adding a DMARD. At first
all I want is a pred shot, a pain killer and something to keep me awake
when I need to be awake and Skelaxin for day use and Zanaflex for PRN
night use. I don't get side effects from Skelaxin, the pred
shots, pain killers or Zanaflex (as long as I use it PRN and not all
the time). I sleep walk if I let my tolerance to Zanaflex build
up. I know it is most likely going to be a fight to get an
effective pain med. Many docs here seem to go straight for
ultram/ultracet and that's no better for me than taking loads of
aspirin.
Ok, so sorry for the ramble. Hope everyone is doing well. I
may try catching up tomorrow or I may have to wait til later on. Hope
it is tomorrow. I want my painful non-flaring life back.
Actually during the worst of fibro fog flares I almost don't notice
that pain because I'm so foggrf/ I'd almost rather feel the pain.
hugs, wayey
WAYNEY--IF YOU SUFFER FROM fIBRO ALSO LIKE ME, I CANNOT STRESS TRYING THE PROVIGIL. GOT FROM MY MD AS RHEUMY JUST LAUGHED ABOUT THE DRUG. IT WORKS WITH NO SIDE EFFECTS!!! MD SAYS LIFE OF DRUG IS 15 HRS SO TAKE IN AM (200mg) NOT LATER IN DAY OR YOU WILL BE UP ALL NIGHT AND GUESS WHAT, I DON'T HAVE TO TAKE ANYTHING TO SLEEP AT NIGHT AND SLEEP BETTER. IT LIFTS THE FOG, GIVES ME NORMAL ENERGY LEVEL AND HELPS WITH THE PAIN IT HAS HELPED ME SOOOOO MUCH I WOULD HIGHLY RECOMMEND TO ANYONE WITH FIBRO. I CAN DEAL WITH THE PAIN EASIER THAN THE CHRONIC FATIGUE AND BRAIN FOG. CHECK IT OUT!!!!!Karen,
My plan is to ask for it when I finally see a doc again. My prior
rheumy, dismissed my questions about ritalin as I'd heard it helps in
the same way provigil does. I'm hoping to find a decent rheumy or
GP who will listen to what I know helps and what I refuse to
take. I live in my body, not the doc. I think I know my body best
after 21 yrs of dealing with this disease.
hugs, wayney
ps if i disappear, it's cause my modem is wacky right now. waiting for cable co. to fix it!
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