I so want to talk with people with this, I have Ra, and Osteo, plus Fibro, and now my rheumy thinks I have scleroderma, I go for a bunch of tests this week. Any one with this, any one here I can talk to about it, I am new here, as of today. So happy to have found this wonderful forum :)
Oh sorry, my name is Annalee, just call me annie, and I am 52 years old. In so much pain, 24/7. I take each day as it comes. and try to do my best dealing.
Annalee, yes, I also have been positively diagnosed for scleroderma, also known as "the stone disease". An amazing process to endure, you hang in there one day at a time, and take care ~~ Cathyjustsaynoemore
...thank you for the responce, I just saw it today, some days its just to painful to sit here and type, Iknow you must get that feeling also.
I have osteo, RA, Fibro, and now possibly scleroderma, abit much, but I take it day by day.
Annalee: here is the list of what I have positively diagnosed with scientific blood work so far: mixed connective tissue disease, overlap, RA, lupus, rhupus, scleroderma, polymysitis, inflammation anemia, hashimoto's, pancreatitis, plus more which my depression causes me to forget :)
And its all caused by "depression" and "stress" and I have been making up all the pain, visible nodules, "stones" coming out my skin, and malar rashes to cage for narcotics :) My favorite symptom I make up is the seizures with the bleeding mouth ulcers and white foam coming out of my throat, from the fungal, bacterial, and viral infections. Oh, let's not forget the open ulcer in my right nostril I was given an ointment for four years that finally ate through my upper palate and came out my mouth. I love American doctors, the morons. Thank God for good friends like Bill W. and Dr. Bob, or I wouldn't make it "one day at a time". Take care Cathy
Oh Cathy, I am so sorry, You certainly have made up a who;e lot there, your right!
Thanks so much for listening to me.
while we are on a whinge about our other halves. my doc said the other day that i have a possible fatty liver that may need a biopsy. when i told my mm (mere male ) his response was oh well another thing to add to your list. I know i wouldnt wish my pain on anyone but sometimes i must admit i would love him to feel my pain even for one day. it has been over 4 years now where i have been in constant pain. just one day without it would be so nice.allycatSounds like a wonderful girl, I also have much of what you have told us she has, it is horrible, I just live life day by day, doing the best I can . I will keep her in my prayers!
Hi Annalee,
If you have arthritis and scleroderma you may want to research the Road Back Foundation Site. Many have had excellent results treating both diseases with Minocycline. I have had good luck treating my OA with this protocol.
Ron
[QUOTE=Hermsi85]Hi Annalee,
If you have arthritis and scleroderma you may want to research the Road Back Foundation Site. Many have had excellent results treating both diseases with Minocycline. I have had good luck treating my OA with this protocol.
Ron
[/QUOTE]
Hello Ron, sorry so late in getting back to you with a THANK YOU ever so much for the link. You have been very helpful to me, and I appreciate it!
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