Hi,
My raynauds just keeps getting worse. My hands are purple all day at work now that they turned the heat down and when the air goes on it will be really bad. I can't even go in a store or handle a can of pop without gloves. My primary doc offered me a rx on my last visit when she saw my hands. Anyone on any meds for Raynauds and does it work? I can tell the arthritis and vasculitis are worse too and am probably going to get my pred and immuran increased soon (I hope). Will that help the raynauds? Thanks for any info.
I feel like a freak with my purple or red hands, livedo reticularis all over my legs, trunk and forearms and now vasculitis spots and blue veins on my face. It's getting disturbing.
Laker
My doctor mentioned some medication for raynauds, but I didn't think mine was bad enough to take anything for it. Yours sounds pretty bad. Sorry I have no experience with the meds, so I have no info. Just wanted to wish you luck with it.Thanks for the sympathy anyway! I notice my posts are awfully whiney sounding lately- sorry. It just that so much is happening all at once right now, and all the things I kind of wondered if I might have, I really do have, so I am a bit bummed.
Laker
I'm on Nefedipin for my Raynauds. I started at 30 mg a day and am now at 60 mg a day. My hands and feet still turn purple, still are icy cold, but better with the 60 mg than before.
My doc said my Raynauds is severe and knows of a drug that will help, but insurance won't pay. How sad. Guess what the medicine is? Viagra. Nice that insurance will pay for a stiffy, but not to help someone for health issues.....
Debrakay,
That is incredible and so annoying! I suppose using viagra to treat raynauds is considered an unapproved use of the drug. My doc was thinking of putting me on procardia (i think that was the name). I am wondering if I will need to wear gloves at work when the air is on, but everyone will think that is very odd so I hope it doesn't get that bad. I fill my travel mug with hot water and just hold it periodically to warm my hands up.
Laker
[QUOTE=Debrakay]Nice that insurance will pay for a stiffy, but not to help someone for health issues.....
[/QUOTE]
Funny
Even with the meds, or higher dose, I still can't hold a cold tonic. And taking something out of the freezer is torture. The funny thing, or not, that I can be on fire (menopause) and yet have ice cold hands and feet.
My hands go purple/cold about 30-40 times a day. It doesn't really matter if I'm touching something cold, but it is frustrating when you have to touch something cold, like a drink, etc.
I was at a neighborhood party and was talking about the Viagra. (You have to know me, I'm always joking and have no problems talking about sex) so the people were cracking up at the thought of ME being on Viagra. Well, my buddy who is an older gentleman, goes running into his room, comes out with his bottle and says that he wants me to have them so I can feel better. He then announces that all of my male buddies need to go to their doctors to get prescriptions so that they can give them to me. He's such a doll. He was so serious.
It is sad that insurance won't pay for this. What's a girl going to do?
On the lighter side, maybe you could have a sex change operation, the Viagra probably comes with that!! And you could kill two birds with one stone!
Jeanne,
I'd take Viagra for sure if it could lift up "my girls" the way it can lift up a D***.
Great idea for the micro bags!!!
As far as a sex change, ummmm, let me think about that one! LOL
The wheat or corn bags are a great idea. I think someone mentioned this before for sore joints but I forgot about it. It seems to me they suggested using the end of a sock and turning the open end back on it so it could be slipped over the hand. I don't think I'm explaining it right but you get the idea.
Laker
Wicked cool idea with the sock. Believe it or not, this blonde "got it", lol.
Thanks!
I tried Nefedipine, but it gave me the worst headaches and I stopped. I deal with the cold by using a space heater. I have it in my office at work and if I have to go to a meeting I bring it with me! I have a Vornado heater, and it's actually really light and small.
What's ironic is that it's 94 degrees outside, but the A/C is set so cold in the building that I have to run the heater in my office.
Exactly the problem. Today it was 73 outside but colder than that inside. If I use a heater everyone else complains because the area is so poorly ventilated that some cubicles are warm and stuffy and some really cold. I am seeing if I can switch offices with one of the "hot" people. If not maybe I could find a heater that just will warm a very small area. That might work. The one I have is too powerful.
Laker