dEAR FORUM MEMBERS, Thank you for understanding 'what we go through' , daily, weekly, monthly!! this week I had an 'infusion' of Remicade that was 3 times the 'old' amount. WAITED until now to know if I was 'going to get a rash, have to go to emergency with a reaction" OR WHAT!???? , A bit unnerving....for 72 hours.
AND I'm trying to get off that Prednisone, how much is the right amount? Can't reduce tooooo much!, we know. So, sort of wondering what reducing down to 1 (5mgs) will DO TO ME!!waiting to see???
PLUS<The prednisone is so strange it has made me crazy to OVER EAT, and retain water like mad , sO, I've been TRYING to cut down on food, ......well STARVING!!, (my old jeans fit after coming out of the dryer,now). That's good.
NOW, I'm tired, wondering what's going on with all these meds, my head hurts with wondering, and it is foggy and cold here on the west coast. But, had a great time at the garage sales, found a nice bookcase for my favorite hair dresser, who asked me to 'look for her' , and a rug for my entryway (like new!), and some other fun stuff.
Every week is a challenge, but I'm so glad to be out and about in my car!!and moving around, Quite a change from last couple of months, huh!
Hugs,Sarah
Sarah, I'm not sure what dosage you are on at the moment, but as you get down lower, the reduction has to be slower and very small steps at well spread intervals.