She tried to put me on it again after a year and I am having the same exact problems as before.
I am swelling up like a balloon and now use crutches since my canes can't cut it.
Does anyone else become an elephant after taking it? Calves get super huge etc. to where you can't take it?
If so, do you know why this happens?
I swell a little. Like the day after I take the shot...but it all goes away.
It wasn't like it that with the pills...but the injections I have it.
MTX was the first meds my sister was on, injections twice monthly, along with 60mg pred. After three times she swelled all over til almost unrecognizable, face, legs, and stomach the worst. Other side effects were even worse,RA lung, stomach ulcers, liver damage, and still on oxygen 24/7. No better with Humira or Remicade and is still in the hospital after 3 days with pluerisy. Most of the time in a wheel chair and has flare ups constantly.Sorry,I don't know what happened to that post... lol
lol, sometimes posts do that :)
First, I am very sorry about the health of the loved ones here. I know what it is like to be so bad and the help to not be there.
I had delayed posting because i flaired so bad the last 48hrs that i ended up stuck in bed and in such horrible pain that i couldn't roll over without my husband helping.
I am "NOT" taking my mtx, that one in a million person... it's me. I have always had bad reactions to pain killers etc. guess i add this to the list.
Maybe your sister wont' get better because she is "on" the medication. I can't get better on it, i only get worse, but i do far better without the meds. I wouldn't stop anything without supervision of course, but it is possible.
On another note, im not on prednisone anymore. In january i had a horrible time with meds and got so horrible bad (became body addicted to ultram too) so i had to come off everything. I was on celebrex, prednisone, arava and other stuff (can't remember) oh ultram "duh". I got so bad i had to stop.
This weekend i got so bad i couldn't cry because the pain overtook me. I flaired so much that each step was very hard just to get to the bathroom. My foot was so large that it was tight and hurt with each small step and a swollen part on the bottom felt like i was walking on a marble.
My hip was swollen so much that each slight turn with that leg (different than foot leg) made me make little screams.
Both shoulders are swollen (not in the joints), under the knees (not in the joints), calves are bad etc.
I wish i knew what doctor to go to next. I am so afraid of them now, nobody listens and they all think they are god.
Genesis - praying that your sister gets some relief - and soon!!They put me on a taper to get rid of the mtx flair because even though i stopped it, i was still getting worse. It's called Methylpred.
Anyway, they said to put me on this before finding me another treatment. Tomorrow is the last dose to take with the morning pill, I haven't got a call from them yet saying what they want me on.
I have bad chemical sensitivity and don't know if there is anything i can take. Even though prednisone can help, it also causes some flair up, kind of battles itself in my body, but it seems to be the only thing that works a little.
If I stay completely away from chemicals and eat only organic I feel pretty good and do ok, but i can only eat the same meal so many times and can only take staying in the house so much.
As you can tell, i am all for fixing the environment lol.
Just thought i would give a slight update on me. Not much change, i feel a lot better with pred but as the taper goes down, the flairs start coming back up. Thank god it is nothing like when i took mtx though. I got stuck in bed "again" with that. It hates me.
Gene... how's your sister doing? Well I hope, she is in my prayers.