and how old were you when you wee diagnosed? me i am 40, diagnosed at 40, but have had it atleast a couple years.
kel
45 and was just diagnosed but I think I have had it about a year.
Laker
I am 61 (soon to be 62). Diagnosed when I was 57 with PMR & Sero Negative RA. I'm 53 dx'd when I was 34?? Can't remember, but had it for a couple years before I finally went to the dr.Dx at 39, I'm 65 now. I think I had it as a child already.
Kathy
My question is when do the distinguish JRA from RA. And does it reallyFrom what little I am beginning to understand about JRA is that they say JRA because of the fact you can get it so young (Joon was born with it...Katie was 18 months old when she got her dx) and you really are a juvenile. The potential for damage can be higher because you have it longer. I would imagine the cut off age would be 18 to stop calling it JRA and just call it RA since you are not considered a juvenile at the age of 18.
Now they treat JRA pretty aggressively. I am on a supoprt forum for parents with JRA kids and one of the little girls needed FDA approval to take Enbrel because she is under the age of 4. The preferred meds of choice from what I have read is mtx injected (the pills are too hard on the kids tummies). NSAIDS, and Enbrel. They do prescribe pred for the kids but do try to avoid that as much as possible. The poor little ones get the puffy moon faces from it and just turn into little balloons from it. Kids taper down from the pred just like we do. And they have just as many problems doing the taper as we do.
I'm 36, and was diagnosed a few months ago. Symptoms started last year after my infected appendix burst. I was diagnosed at 51--had it for a little more than a year before that. It's been a long four years.I'm 40 and was just dx'd...but I think I've had it a while. I was diagnosed at 22 had symptoms since i was at least 15. I'm 44 now62 - diagnosed about 10 yrs. ago. Had disease for at least 10-years prior to proper diagnosis.
Janis
Adult Onset Still's Disease, possible lupus (new rheumy hinting broadly), degenerative disk disease, in denial about fibro, ehler-danlos
Rocky-
Age 16 seems to be the magic cut off line between adult and juvenile. JRA has 3 different forms that each tend to manifest diffferently in an adult
Polyarticular most closely mimics the adult form. However patients with this form of JRA tend to be seronegative. Also the joint damage pattern is a bit different. Like the adult version this form hits girls harder
pauciarticular jra is most likely to remit of all the forms but if it continues onto adulthood tends to become one of the spondylapthy type arthritis. This patient also tends to have the HLA-B27 genetic factor. Under the age of 7 it seems to hit girls more above 7 it hits boys.
Systemic is the rarest form and involves spiking fevers, rashes and lots of internal involvement. It remits in about 50% of cases. Adult onset Stills Disease most resembles this form.
i was 3years old when i was dignosed and i am 13 now..........i have jra/ploy.....
Ashley...you and Danielle are sooooo close in age!!! She is 12!!! You girls really need to talk with each other. Don't be shy...she's a neat kid. And I'm not saying that cuz I'm her momma either lol.
Danielle has poly jra too! At least that is what family doc says. We will see what our rheumy (she sees mine) says in May.
im 35, diagnosed at 33I'm 45...diagnosed when I was 30105
oh, you mean actual age, well 54.
When I was 43 or so I was diagnosed with "synovitis." Within a couple years they were calling it RA, but still were only treating it with aspirin.
I finally got a definitive diagnoses and DMARD therapy Feb 2004.
I'm 48 (almost 49 but don't tell anyone). I was diagnosed at 47 but had it long before as I had my knees replaced at 42 and 43. I would say I had it from 39, the night my knee blew up like a football and my life changed forever.I'm 52, was diagnosed when I was 51 but I think I've had it for a few years.Am 62 and was diagnosed when I was 52 but I had symptoms for several years prior to diagnosis and I ignored them and contributed the aches and pains to "aging"
Stan and I want to dance on our 50th wedding anniversary, I'll be 98 and he'll be 101. That's our goal!
I was 32 but had swollen knuckles since i was 17 and fatigue so it could have been that but no one dx me.I am 42 (43 soon) now.
I am 46....Dx'd with RA at 26.
Developed aggressive RA from cracking my knuckles as a child!
Just kidding!!!I'm 42, diagnosed at 42, about 2-3 months ago. I have had symptoms since I was about 26 or so. My first thing was carpal tunnel. Then TMJ. Then shoulder pain. Then hips. Then knees. Then my neck/shoulder area after a skiing accident where I broke part of my neck bones.
I am 21, diagnosed with "synovitis" in Right knee at 20 and had subsequent "synovectomy" to get all the orange junk out. My Rheumatologist gave me some 8 word diagnosis at 21, but the term Sero-negative is in there for now :) Knee feels good though, just ran 5.5 miles with a backpack on behind my new apartment. -JON I am 27 and was diagnosed when I was 23, but started having symptoms when I was 20. I'm 47. Was diagnosed at 44. I started with Raynaud Syndrome at 8 but then it stopped and i started again at 18 but after seeing1000000 doctors ove of them told me i had a conective tissue disease...but when i was 22 they found out it was RA.... I am 29 now.... I am 56 years old. Some days I feel I'm 90. Dxed with RA in '83 at the age of 31, but I've had aching joints since I was 20. In '99, a rheumie said I had Fibro, not RA... then 7 years later, I'm in a full blown RA flare!
39. Went from doctor to specialist. I think they thought I was a complainer
so they just gave me medication to shut me up.
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