I have 10mg dose each day of prednisone and it takes the pain away so I can get out of bed.
But not for long and not early as far as bed goes because I'm still very fatigued.
I get hot and sweaty walking around a store or after doing a load of laundry, fixing dinner ect.
So does prednisone take away the inflammation or just the pain from it and leave other stuff? Or, is this other stuff from something else I'm still wondering?
I do awake with pain in my knees...that I never had before. Cannot stretch for the cramping will come which I'm also getting in the sides of midriff area and the back on each side there now.
What say you?
~Kewanee
One of the first things I noticed when I started taking prednisone was that I felt warm for the first time since I can't remember. As I have mentioned before I am also hypothyroid, and one of the side affects of that is being cold. So initially I liked that feeling. When I was in stores though I would get warm to quickly and sweat would start running down my face. I guess it was like having a hot flash. I have never had a hot flash, but maybe that is what they are.
I also had pain in my knees and my groin and shoulders. I started out on 20 mg of prednisone and it knocked that pain out in two days. It was almost like a miracle. I haven't gained any weight, but have puffy eyes.
I am no on 2.5 mgs and soon will start on 2 mgs for a couple weeks and then go to one mgs for a couple weeks. I still sweat very easily and I am fatigued. So prednisone can make you sweat, even on 2.5 mgs. I mowed the yard the other day and I was dripping when I got done. That has never happened before.
I was on the 20 mgs for only two weeks. My rheumatologist started me on methotrexate after two weeks too so that I would be off of prednisone sooner.
You are the first person I have run across that had pain in her knees. When I first got this disease, I thought I had hurt my knees exercisizing on the exercise bicycle. I did stress them and they couldn't get back to normal. Now my groin pain is there, but livable. I think I did that exercising too. It seems one can't exercise too much and stress your muscles. They just don't bounce back into shape.
I'm no expert, but I am wondering if your rheumy didn't start you off on a big enough dose of prednisone....don't know what their criteria is on how much to prescribe. I was in pain pain pain and she started me on 20 mgs. I couldn't get up off the toilet seat, roll over in bed and had a difficult time getting in and out of the bathtub. I loved the warm bath water, so I managed very carefully to slide down the back of the tub. Getting out was more difficult. My knees really hurt and wouldn't bend.
I hope this goes away in the 18 months that it supposedly takes to run its course. I really don't know when it started. It was August 2006 when my knees started to hurt, but my lower back hurt for about a year before that.
Does Advil or any of those help you. I take a couple of those when my groin pain acts up and it seems to help. Mary
Mary,
I think I have had PMR for quite a while. I've had pelvic pain and lower back pain. And, if you do have muscles in your back hurting, they can involve the muscles in your pelvic area.
Right after I started the Prednisone, my pelvic pain went away for two days. I couldn't believe it, I didn't have a pain anywhere in my whole body. Felt like I was 22 again, and I am 63. But, then I got sort of a catch in the middle back right at my waist line. Could hardly get up. This was while on Prednisone. So when it went away, my pelvic pain returned.
I think a bit of my pain is from my thyroid. I visit a thyroid forum and quite a few of them say they have pain around some of their joints.
I never sweat though before I started the Prednisone. So that is a side effect for me. I'm glad I didn't get the weight gain. I'm 20/25 pounds overweight now. Wised I could lose it, but I like to eat too much. I'm with you Mary. I like to eat to much. Literally. hehe.
So it was a bit drawn out with you. I have had the pelvic pain, it was just short term and I didn't associate it. Hurt when I walked and like a hot poker when I sat. Thank goodness it didn't hang around.
So sometimes the disease can flare or overtake the prednisone it seems to me, but not stay.
I read an article on GCA that was really good. It spoke of PMR as well of course. It said Enbrel was being tested but no large studies have been done and that they need them.
Said it was hoped one could take that and reduce the prednisone, maybe to none. Hmmm.
Why can't they try something besides the prednisone?!!! I just hate it. But then I love it. Yes, love, hate relationship. It takes away most of the pain after all.
This sweating thing is getting worse I think and it sure feels like weakness.
~Kewanee
I remember eating breakfast with my prednisone in the AM at my computer and my underarms would be dripping like a friggin' tap!!!had a hard time keeping the keyboard from floating away
Horses sweat..... men perspire and woman merely glow
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