Well - we had over 3 weeks of no drama!!!
Our 6yo daughter has had no severe pains or fevers in this time. Mind you this 'mystery illness' is always there, every day she has felt sick and been 'generally achey'.
So I had a rest from this board and pretended like we had no problem. Ha!
Yes, her pains are sneaking back - severe thigh, leg and back pain yesterday and last night - and with these waves of pain she feels so sick and dizzy and her head aches. Yuck!
Yes she had a 'reasonable' 3 weeks, What a joke! I can't believe we think like this. When a 6yo is sick and in any sort of pain EVERY day - that is never reasonable - but it is the longest bout of no extreme fever and pain since sept last year - a very small blessing I know - but we all caught our breath!
In this time she is now being bullied at school. She can't keep up with other kids - can't run for long - especially when she is particularly achey. Yesterday her leg was sore so kids were running off on her and giggling cause she could not catch them. No huge deal I know but talk about rubbing salt to the wound! she is just coming to terms with it herself without other kids making fun of it!
These kids are only grade one! so I don't wish to talk badly of them - kids will be kids - but I feel for our girl who is very sensitive and has felt very hurt!
OK. I am sick of calling her "our 6yo daughter". Her name is Maddi.
Maddi is still figuring out when she can and can't exercise. she goes to school and tries to participate when she can - at this stage we can't push her as we don't know what we are dealing with. She just became really confident the last 2 days- went on a couple of big runs - and overtook a couple of kids (!) - and then the pain came back!
We are off to rheumy on Thursday so we have organised care for my two younger boys and fingers crossed. I DO NOT want to go back as I feel they may want to keep her for more tests...ready for the BIG conference at the end of the month. And god knows what meds we will try next. currently she is still taking naprosen which appears to be doing not much, possibly nothing!
I am nervous and hope they have some answers!!! soon.....
The poor kid is so sick and tired of it! says she just wants to get better and have no more pain - but I feel like this thing will be there forever.
Just an update and a liitle whinge. sorry.
will let you all know what happens after doc and conference.
fingers crossed!
Nelly
I am so sorry your daughter is feeling so bad.I hope you get the help she needs really soonSo sorry that your Maddi is getting a rough time all round right now - it's hard enough for adults to go through, but kids will be kids, and that it all must be so hard for her to deal with and understand - and break your heart as well.So sorry for Maddie. Could you talk to her teacher about everything that is going on. The teacher might be able to find a special child sensitive to Maddie's needs to be her playmate on the playground.
PJ
Hi Nelly, good to hear from you. YOU are such a brave mom and I bet you had a lovely big mothr's day! It is hard to get through the days sometimes with a sick and ailing little girl, Maddi, what a cut name....it is so important for you to take care of yourself as she needs your kindness and great support. We parents are really brought to our knees when people hurt our children, when they are sick especially, I can only imagine your depression over this 'stuff' what ever it is!! It could surely be what we all on this board understand, only too well, the soreness, the achy places, the can't keep up (fatigue), it is the same for all of us in some degree or another. My prayers are with you and I know you will conquer this one way or another. Maybe she'll GROW OUT OF IT?
well, maybe....love, sarah
I feel so badly for Maddi! Children can be so mean at this age without even intending to. It might be a good idea to let the school know what is going on with her. I hope you get answers soon and her pain can be controlled. Your family is in my prayers.
Deb
Thanks guys!
Maddis teacher is excellent. wrote a short note this morning to explain maddis current aches and briefly mentioned wanting to talk about the trouble in the schoolyard at some stage and ALREADY she has spoken to a parent who has rang me already .
The mother of the girl causing trouble is a friend of mine - so very tricky! anyway we don't blame the kids at this young age, hopefully they will learn and grow through all of this - it is tricky for maddi and all those close to her.
will keep in touch...
Nelly
Oh, this breaks my heart. Why do little ones (why does anyone) have to go