Sorry for the copy and paste. But I am on 4 different boards and it is a lot to type out 4 times lol. I also want to thank everyone for the support and care you have shown to us while we waited and waited forever it seemed like for this appt.
The appt. went very well except for the blood draw. Oy vey. And I talked and talked with her about it, hydrated her the night before and today, and we still had issues. Whew. It came down to where she had to go potty and I wouldn't let her go til she gave us some blood first lol. It was over after I said that in 2 minutes lol.
She has to go for some xrays of her hands and wrists. He could feel the fluid in both her wrists. Her wrists and hands were extremely tender also. We are going to do a pred pack starting this weekend so she is not so wired out in school for the rest of the week. Thankfully, it is a long weekend and they are out of school early on Friday. So I will start her pred when she gets home at 1130. She is also on Celebrex. He gave us a whole bunch of samples of it too. He is basically waiting for lab work to be back before we take any further steps with medication. He said the most important thing right now is to calm her inflammation. I am hoping the pred and celebrex combo do that. He did say that we are very lucky that we caught everything early. Gives us such an advantage with treatment.
He is also testing her for parvovirus. I haven't done any research on that yet. He said he just wants to rule it out so we know in what direction treatment needs to go. He said that the virus attacks young people her age and can take forever to go away. It has the same type of symptoms as the JRA. But he still thinks it is the JRA especially with my history.
So that is that and we play the waiting game as usual. I am going to have to find something for us to do over the long weekend to direct some of the extra energy she will have being on the pred.
Sounds like everything is under control. I am so happy for you having such a good Doc.When I first started with symptoms of RA - runs strong in my family too - I was testing positive for Parovirus which is a mono type thing (i think) and apparently when first dx'd it can come back positve even if not really there? Your blood can play tricks at the beginning I was told. I was happy thinking just a virus but when they took blood a second time to confirm whether it really was the virus and that was gone and good old RA was confirmed. My Rheumie said that it is common in younger people predisposed to RA pick up the parovirus which activates the RA in their body.....
Hope this helps
Sounds like a good start on things Gram. Good Luck to Daneille as she begins her predisone. I hope it makes her feel worlds better quickly.Seee there... needles are NOT our friends
Anyways... glad it went well. Hope the celebrex helps her out, I know it did for me. Oh... the first NSAID I was put on when I was 14 was Lodine XL. I did not get celebrex until I was 20.
Hope she improves fast.
Hi Gramma, I hope all goes well for your little girl. I've seen the effects this disease and the meds can do to an adult and its awful,But for you that have children or was Dx'ed with it as a child my heart really goes out to you. Good luck and God bless...GenesisYay!! It sounds like everything is moving in the right direction. When you research the parvovirus also look into Fifths disease. (it is a form of parvovirus) My daughter had that, it says it goes away in about 10 days, but my daughter had it for 2 months. My daughter also had what the diagnosed as Erythema nodosum (sp.?) in college, this hung around for about 6 months and was very scary. Hope everythings goes well!!!!I hope Danielle feels better very quickly. It is so good that you are on top of this and treating it so fast. Good luck with that prednisone this weekend. I know what it does to me! People can actually guess how much I'm on at a given time!
I hope Danielle is doing well with this and can get herself focused on her usual activities and life soon, with this being a smaller part of the whole picture.
Laker
http://www.patient.co.uk/showdoc/40024615/ the slapped cheek syndrome is quite common in school children here, nicole my youngest had it at nursery, but no arthropathy at all. I hope she will be better soon.My 18 year olds still screams at blood testsA friend of mine had parvovirus. I thought only dogs got that until sheYes, pred. Yay. Whooopeee. This is gonna be a laugh a minute. NOT! I will be in charge of her Friday as Danny is at work. He gets her Saturday as that is my down day. He is actually off this weekend!! Sunday I think we are going to go to the chocolate fest (yes chocolate fest do ya hate me now muuuwahahaha!!!). Monday I think we will hit the beach as it is not going to be hot out and not too many people will be there like last year. I wonder how many grey hairs I will grow out of this experience.
Grammie!
Thank you for the update on Danielle. She was such a big girl for her appt today, she deserves a little something special
It sounds like your rheumy is looking at all the options and starting her on Pred to calm those nasty inflammations. I hope it doesn't make her as grumpy as it does me
Phats One word of warning for everyone - Fifth's disease or "slap face" can be very dangerous for pregnant women to be exposed to, as it can harm the unborn baby. That was always an issue at the elementary school where I worked when the disease would pop up again, special measures would be taken to protect any pregnant teachers. Glad to hear about the successful appointment! Give Danielle a big hug for me!
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