Oh swell, when I started to type my FINGERS wouldn't even bend, so who knows what wil l come out there (tjre_)jere JERE , HERE!! sICK!!
THE WORST thing for me is the depressed feeling I get when I have THIS fatigue. I want to do things wiht others, but I can't get off of the couch. I want to play games with the grandkids, but the legs, feet don't work. I want to use my hands for art , but unable to grip the pencil, charcoal, etc. It is really depressing to want to do things, but not be able to.
Sarah
The illness itself can cause depression and then add in the side effects of meds...the fatigue...the ups and down with the flares...etc.
If anyone feels they are depressed, please call their docs. It is a very issue for us. Sometimes we need a little help balancing everything out and dealing with what we do on a daily basis. For those of you that do natural therapy for their treatment...I think it is St. Johns Wort that helps for depression.
I find my moods vacillate since this disease started. It has affected how II'm sorry to hear you're feeling down Sarah. I wish I had some really helpful advice.....but I don't really. Please just know you aren't alone and we all know all too well exactly how you're feeling.
Hope you will soon be feel better emotionally if not physically.
Hang in there girl. This too shall pass.
We have all been there. Just when things seem to be under control thisSorry you feel so bad Sarah, its a feeling we all get, the frustration of not being able to do the things we want to is horrible.Its only 6.33am here and i have been up for 2 hours an i just want to sleep but its impossible .We just have to look forward to tomorrow and hope its better than today, so you can play with those lovely grandchildren, and do your art...............and maybe i will get some sleepHi Sarah, it is the worst part for me, the fatigue, as I normally get this worse when the joints are felling better, so I look better, feel less pain but the fatigue stops me doing what I want to do and if we don't understand it, how can our families/friends understand it? Thank God for our Drs, don't leave it too long SArah to ask for help, I hope you have a good GP, regards Janie. St John's wart can be hard on the liver if the dose for you is not right. Be careful if you are already on meds that hurt the liver, check with your doc first.
The mind, the drug and the disease can cause fatigue and depression.
1) To relax the mind and try to unload the disturbing issues in the mind. Meditation, rest and sleep can be helpful.
2) To find effective herbs to replace drugs gradually.
3) To eat correct natural foods to improve body health level.
Finding a appropriate solution is very difficult and requires many components and adjustments in belief, lifestyle, determination, learning etc.
I'm not sure, but I think a lot has to do with 'lack of caffeine'! I'd drink several cups of coffee with caffeine (before my heart operation in Dec) and even drank it in the months after, but my heart would 'pound' and I had an irregular thump-duh-thump, in there, so I quit the regular coffee! I now drink decafe (which has some) but not much.
I can feel the difference without caffeine! I hear you can get off of it too, (along with my prednisone reduction and trying to reduce calories and get the lard off), Sarah