Yesterday I tapered down to 7.5mg of pred from 10mg and worked out in the yard all day pulling weeds. Big mistake. I knew it as I was doing it, but just wanted to get it done. Woke up this morning in agonizing pain, took my morning meds and crawled back into bed for an hour. I got up hurting more than ever and was sobbing. Hubby gave me a back rub which calmed me down some. I took extra pain meds, a muscle relaxer and ativan. I was very close to asking him to take me to the ER but know they can't do much more for me than I did for myself. I later went out and did a little more work in the yard - a teeny bit and was showered and in my jammies by 5:30. I love mondays, because boys go back to school, hubby to work and I can sleep in and recover from the weekend.
Tapering is the worst!
I agree that tapering is the worst, I have been trying for 7 years and can't get below 10, although I won't stop trying, I am currently on 9mg down from 10 last week, but I have already hit the flare, I was doing so well, I will be interested to see what my ESR is this week. Good luck and I hope its not too hard a road. JANIE.AUUUUUUUUUUUUUUGGGGHHHHH!!!! You aren't supposed to be doing that much!!! You are not superwoman!!
Next time you can not control your pain at home go to the ER. They will actually do something for you. The thinking in medicine (at least where I live) is that no one should be in so pain that it is agonizing and overwhelming. They can give you something stronger than our at home meds to knock the pain to a tolerable level.
Owie; That is too much to taper at once. my rd has me taper 1 mg a month even though I have only been able to taper 1 mg in three months.
I opened this thread because it would have been my title. You sound way worse but I have been slowly turning into the cripple I am today. I was GREAT last week, even entertained REMISSION. Then I ran around on Friday. All weekend I have not been able to do anything. Took my Humira Sat. even though we were trying to push it to Mon. Woke up all crippled this morning. I am still grateful for last week but this sux. I am with ya but I don't have many responsibilities and Kelsey's meds were raised and she has been an angel. It IS a roller coaster ride. Go back up on your pred a bit and get some better pain relievers !!!!! I slept in a peed in bed as I wanted to sleep, I was in so much pain, I let puppies sleep with me. They let me sleep but no more, I have to kennel them. I was really looking forward to my aide coming over but she has personal stuff to do today. Rain storm is coming in. At least the heat is over. How are you today?
I am doing better this morning. I ran a couple of errands with hubby yesterday and worked in the yard a bit more. Today I am just relaxing. I was supposed to go do a little shopping, but I think I will wait on it. Rheumy wants me to drop to 5mg starting fri. I have never been able to taper this fast, but I will do as he says and call him if necessary. Ugh, a week from tomorrow our guests will start arriving...Yes, you need to just relax and let your body recover. Take heart as I did the same thing a week ago and good luck with your guests.