I am going for ssdi! | Arthritis Information

Goodmorning everyone

I found Disabilities Group and they are going to take my case from the begining,(i am too tired to do this on my own). I received a letter from my Rd yesterday and he says that I am handicaped and will be for the next 12 months. He filled out a physical capabilities evaluation. He wrote that I can not do anything except sit for an hour at a time. I can not do anything with my hands, wrist, elbows, and my arms. I can not lift anything, or walk. I hope this will be good for my case. Now I do have a two year old, and bless her heart it is almost impossible to do anything with her. I believe that is why I am in so much pain all of the time. My mom came over yesterday and I told her that I don't want any money from her, just her time, to help me with Trinity. I am scared that one day I am not going to be able to do anything. This last time I saw my Rd he said that I am one of his hardest and most puzzled cases.

So for those out that have traveled this road can you give my any hints. I know that having a two year and being 42 are really what is going to be the hardest to overcome. But i really could use some hints and maybe some of you out there can bottle me up some courage and send it my way. I really am scared, nothing has worked enbrel, humira, I am going to take my third infusion of Remicade on the 29th of June.

Thank you for reading my post

Sandra

I have no advice but wanted to wish you good luck and better health!

Trinity,

My husband and I adopted a precious baby from China in 2003 when she was 13 months. It was quite a challenge and I can say our daughter adapted quickly and became quite independent. She was talking, walking, potty trained by 18 months. She learned to crawl up into the chair so I could love and cuddle her. She learned to buckle her own seatbelt.

I felt so quilty about my condition but she is the most happy well adjusted child you will ever see. She is now going on 5 and I am 52.

My suggestion is get her into day care preschool situation where you can get so free time or have friends and/or relatives help out. It is important that you get rest too. Other than that things manage to work out and she or he will grow to understand mommy just can't do those fun activities.

Good luck to you.

LuAnn