hello everyone
There was an exchange a few weeks ago about spam, and I see we've started
to get some in the last few days. (Bill Smith and Trudi King) We might
discourage them if we don't open them. You can get the first few words of
the message by hovering your mouse over the title of the message, without
actually opening it
These 2 aren't porno ones, but even so they are anuisance.
Hope everyone is well.
MargaretGood idea, Margaret! Let's hope we don't start to get bombarded with this stuff. By the way, I don't know if you recall or not, but you and I are on a parallel track with PMR...although you are a little bit ahead of me. I noticed in one of your recent posts that you are down to 4mg?? Congratulations! I drop down to 4 this coming Wednesday and have my fingers crossed...I know the first week or so will be a bit of a go but taking ibuprofen once in the morning and again at night sure helps me get through the tough spots...hope it continues to work for me this time. How is your sed rate doing? Mine was great last week for which I am very thankful. Take care...and continue the good fight!hi Gma
yes I remeber. Good to hear from you. I found 4.5 to 4 the most difficult
drop yet - not because of any significant pain - there was a little, but not
much and it wore off quickly in a morning. It was the emotional fragility
that got to me. It was a good thing I'd read about it because it is most
unlike me - I felt as if I would have burst into tears if someon had said
something nasty to me. It took over 2 weeks to go, and has convinced
me that I need to plan my next drop for a time when I have no stressful
commitments - or I might make a real idiot of myself.
On the Sed and crp - I'm very difficult toget blood from. and the last time
I saw my Dr he tried, and then wwe both agreed to give up! His line is
that I'm well and coping, my blood pressure is lower than it's been for
years, and just keep dropping to keep the symptoms under control. (I'm
in the UK, tend not to do as many tests I think!)
keep well
MArgaret
Hi Margaret...thank you for the input about emotional fragility. I find that I do tend to tear up quite easily these days anyway...sigh. I had thought about lowering the prednisone last week but my husband took a brief vacatiion so I decided to hold off just in case so we could enjoy the time together. I am going to be dropping down from 5mg but may have to do 4 1/2 if it becomes too difficult. This has truly been a learning experience and I will be ever so thankful once it is over. Take care and stay healthy! Gma
I haven't been on the board lately.
I was reading all the posts about emotional fragility. Boy, do I have that. I am always in a good mood and small things make me content. But since lowering from 5 mg to 4 mg that has been the most noticeable of "sadness" experience of the tapering process.
I have morning pain, so I take advil or relafen. I will go down to 3 mg on July 1, which means I will have been on 4mg for 5 weeks. (I might even try 3.5 mg for 2 weeks, then 3 mg for 2 weeks
Last blood work was fine my sed rate was 10 and crp was .4
This is such a guessing game and I am one that likes straight forward solutions!
Let's all keep in mind that this goes away. I know of 3 people that HAD it and it's gone.
Janet