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Kelsey is totally out of it.  She is drooling, cannot do the simplest things, if things do not turn around she is going to have to be hospitalized Monday.  I might not be able to get her back.  It just tears me up.  A huge part of me wants a break and a huge part of me is breaking - to see her back in an institution.  Social worker said she is not a foster home candidate because of how serious her mental illness is.  Everyone tells me I need to let her go - as if that is easy.  It would be different if the quality of the institutions were half decent.  She is going to hate me.i am sure she wont end up hating you in the long run . i really feel for you , we like to think we can always be there to help our kids and i know that you have done your best and beyond to help your daughter . but sometimes help is needed that we just cant do . it wont be easy but might be the best thing for both of you . i cant imagine what pain you are going through emotionally and physically at the moment but know there are others supporting you in whatever happens . you are a good mum . remember that . Roxy..I'm so sorry your having to make that decision. But just remember that you are making the decision for what is best for everyone.  For Kelsey, for you.. for your family.  I dont mean to sound blunt or mean but maybe she needs a different kind of care then you are able to give her right now.  If you keep her home, it will and it has taken a great toll on her health wise and im sure mentally, and you arent much help to her being in that condition.  I couldnt even imagine what you are dealing with right now.  You will continue to be in my prayers.  Im here if you need me Roxy!I'm real sorry to hear that Roxy. You and your family will be in my prayers. Roxy, my heart is breaking for you right now. God knows how hard you tried, but it just was not meant to be. You have been a good Mother and Kelsey will never hate you Roxy.  Perhaps the institutions in Oregon are better than in CA and if it is nearby, perhaps you could visit or have Kelsey home on weekends.  Gloom and doom are hovering right now as it does with all family illnesses,  but it will get better with time.  Remember to take care of others, we must take care of ourselves first. It probably would be a good idea to hospitalize Kelsey for an evaluation and then do what you have to do. 

Sending prayers, love, & hugs
N&T
now & then39256.3799768519Roxy- you have to do what is going to be best for all of you in the long run.If you carry on looking after Kelsey the way is she is, it will put so much strain on you and you will get worse, then kelseys care will suffer too.I am sure she wont hate you, its cetainly not easy but it will be more difficult the longer it goes on. You are in my prayers.Oh Roxy.  I don't have any insight for you that others haven't said, but I wanted you to know that you and your daughter will be in my prayers. I'm so sorry Roxy and will be praying for you and KelseyDo you have any idea what caused the setback? Do you mean she is drooling, sitting there staring, not being responsive? I'm trying to get an idea of what she is dealing with right now.

Oh, Roxy, I am so sorry you are facing this. I know how bad things have been lately, with both of you sick.

I know how much you have wanted to keep Kelsey with you, and have her home in a family setting. But, Sweetie, I really think you may have to let her go, for now. I just don't think you are strong enough right now to be able to take care of her, in this condition. I hope you understand that this is coming from my heart and  how much I care about you.

Your life has been a roller coaster for quite a while, now, and for the sake of your own health, I think you need to settle the things that have been troubling you so much. You have been through some drastic life changes in the last year or so.

Do you know what the conditions are in the institutions in Oregon? Hopefully, there is a better atmosphere than where she was before.

I will write you privately soon. Take care, Roxy. There are so many of us here that really care for you!

Much love,

nini

Roxy, sorry to hear that Kelsey is having so much problems. But you know that there are times when a hospital setting is the only place when they get bad. You are not helping her at this point by keeping her home. That is why you have to make the decision for her.

I know it is awfully hard as I have been faced with similar events. But you must do what is the best thing for her. It may be that she will improve again and be able to come stay with you later. Also, this is not CA and you probably will get better care and cooperation from OR than what you experienced before in CA.

I am thinking about both of you. Do what needs to be done. Kelsey will not hate you. She might be angry for a bit. But when she gets better and she can look back on how she was being, she will probably be thankful that you took the necessary and hard steps to make sure she was given the care that she needs.

You need to let yourself get well. Use this time without her to get your own health stabilized.

My heart is with you.
I am going to give it one week.  I am asking a social worker on Monday to come out and evaluate her.  I had them come out last week and she said she just has a really bad flu.  Things went way downhill from there.  I also have to take her in for her Resperidal shot she missed last week.  Just could not get her out of the house and it is a 30 minute drive.  I am so torn.  I feel like if I let her go.......... she is condemned to live in a hellhole the rest of her life.  The institution here is no better.  I hate to think I am going to outlive my daughter but I expect her to get AIDS in that place.  They will not allow patients to have condoms, they are considered "contraband" but sex is rampant.  Many of the people are right off the streets.  What do you think the odds of STDs are?  Our society is sick.  How can they let human beings live like that?  I wish every politician had a mentally ill child.  Kelsey has blossomed since living with me, she has made amazing progress, this flu has just devasted our household and what we had going.  It is obvious how fragile our situation is.  roxy39257.4307175926Is that the only institution she can go to? Sorry dont know how it works out there.Roxy - I tried to PM you but your box is full. Oh Roxy - how my heart breaks for you. My daughter is having problems right now (long story, bad father) so I can empathise. Can I ask what medication she is on - you may have read my ramblings on benzodiazepines, prob. not but they fall under many names, valium being one of them but there are many others and drooling is a symptom.
They are addictive and have so many side effects no one would believe them unless they had experienced them personally. Please check them out on the net as drs are so ignorant re the side effects.
Can you search around for a safe place for Kelsey, maybe a little further away but where you will have peace of mind.   It is a mother's nightmare and I hope you find a satisfactory resolution.   Are you getting help for yourself, a councillor or someone who can listen, you need suppory at this time.   Is Brett back and is he being supportive. I am not checking in on this board so much lately, not so good myself but my love to both you and Deanna.
Cassie

chlozaril, resperidol, remeron, Klonipin, lithium, oxybutin,

Brett came in late Friday to visit his son.  His son is here for 2 weeks.  He took her to hospital as I have been mopping floors, following Kelsey around, dressing her, feeding her, changing her sheets, doing laundry.  I am shot.  I cannot drive.  Bad flare.  Thank you for your compassion, understanding and prayers.


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