No one knows what wrong with me. First the doctor said I have pmr my sed rate was 40 and but me on prednisone 10 mg up to 20 mg for a week started to fell a little better. Then he stopped the prednisone Got bad real fast. So he but me back on prednisone. Same doses but for a little longer. Than the pain got real bad in my back went to the ER got no help there. My doctor than sent me to a reumatologists. My first appointment he put me on 40 mg of prednisone and ultracet for pain. It did not help with the pain at all and I got a headache that would not go away I could not go outside during the daytime because of the sun killing my eyes I could not use any lights in the house and I could go to work because of the headaches and the fatigue. So I went back to the reumatologists. And he decided that I did not have pmr because my sed rate was low. And I have Fibromyalgia and put out of work because of the pain I was in. he is having me go to the lab every two weeks for blood work to see what going on with my sed rate. Went back on Thursday and he kept talking about pmr to me and then he said me sed rate is going up every time I have the blood work done. It went from 11 to 22 in two weeks then up o 30 in two more weeks. He said if it keeps going up I’ll have to go back on prednisone. So that were I’m at. Can any one tell if they had this much trouble finding out what was wrong with them. Thank you for listening vicki
a way of diagnosing the pmr, and used the sed rate as a confirmation. When
I had another set of blood tests 3 weeks later and the sed rate had gone
right down he said 'that's the pred doing its job' . What I've understood
from the start (but I could be
wrong) is that the pred brings down the inflammation, and the sed rate, and
the pain relief follows from that.
I do hope you get a diagnosis soon.
Margaret
Margaret is right.....if the pred does not take away your symptoms you do not have PMR.
Just read about a new treatments for Fibro
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marianna
thank you for the web site i'm going to print it out and hand it to my doctor some of my symptoms did go away with the pred but the headach were so bad i could tell you what was going on with my body or what was around me so i think if my sed rate kepts going up he will give me the pred again put not so high of a dose he gave me 40 mg a day from none at all and i think it might of been to high for meto start with i didn't have the headaches at 10 mg or 230 mg that my gp gave me but when i went to the reumatologists i was not on any pred and he put me on the 40 mg
thank you
vicki
Vicky I think I mentioned to you before...those headaches are definately from the Prednisone. I had exactly the same. I felt my head would explode. Side effects from pred is cranial (which means in the head) and eye pressure.