I have been doing my EOD for 2.5mg and I done good the first day I had to skip it. Then last night was the next day I had to skip it. Well... I woke up this morning in pain and barely able to move or even get out of the bed to go tinkle.
I got back to bed and doozed off and on because I hurt soo bad and if I moved just a little I would wake up because of the pain. So, when hubby woke up I made him get me 2.5mg of pred and 4 IBU's.
I do not know what happened, tapering was going along so good and then BAM! I was not able to get out of the bed and move around without pain until about 3pm. It sucked!
I think these T-Storms we are FINALLY getting is what might be hindering me in my taper. Or maybe I just should not be tapering off as my RA is fo' sho' not under control. I guess Monday if my RD is open I will ask for another refill for my pred and say I cannot taper no more.
So sad about this, but not surprised as I was just hoping like everyone else on this board that my RA was well enough under control to allow me to get off the pred, but it looks like it is not.
Oh well... at least I know 2.5mg does help me. Pretty low dose compared to where I was last year - 15mg.
POOR YOU JOONIE, So sorry the pred taper is so painful, hope you feel better soon. 2.5 doesn't seem too bad and if it helps you gotta have it! Try again later maybe...love and hugs...
Thanks Genesis
I wish I could completely taper off, but looks like now is not the time
Do you feel better tonight?
Yeah, I started to feel better around 3pm, when I got out of bed pretty easily. I have been having little pains here and there, but that is to be expected with this funky weather!
Oh... I almost stepped on a snake at the in-laws! It was Skurry!! Poor snake got his head chopped off
I have never ran up on a snake in my life. It really freaked me out. I am just glad it was not a black runner
LMBO JOONIE
Oh Joonie, I'm glad you're feeling better. That Prednisone is one tuff cookie. I tapered down only to have to get back on 5 mgs. Stinky stuff!!!
OK, this is gonna sound stupid, but why does everyone want to be off prednisone so badly? I thought that their weren't side effects in low doses. I took it for a while, during the time that I was really messed up. I started at 60 mg and tapered down. I quite resembled a chipmunk for a while, but I didn't realize what I high dose that was till I started reading these boards.
Anyway, Joonie, I hope it works out the way you're hoping it will and that you feel better real soon. And I'm glad the snake didn't get you
Linda
Oh, one more thing...what is an EOD?Joonie,
just slow down the taper..going from 2.5 to 0 is a 100% drop in dose. Try cutting the 2.5 in half or asking your dr froa script of 1mg pills and going 2.5 down to 2.0 then 1.5 then 1.0 etc
Buckeye - That is what my RD's instructions were, to take 2.5mg for a month and then 2.5mg every other day for a month then STOP! That is how it says it on my pred bottle and the instruction sheet.
Linncn - I have been on pred for with a month or so break for over 2 years now. I did not feel it was helping me at the dose I was on, or maybe now that I think about it, maybe the dose 5mg was too much for me and that is why I felt it was not helping me. I noticed my muscles were starting to get inflammed and figured it was from the pred again. Because the way I was feeling was the same reason my RD took me off the pred for those couple of months, plus some other reason I cannot really remember why, but mostly he was worried about the inflammation in my muscles. That is why I wanted to get off it again.
I will live being on 2.5mg for now. I just want to be off, I do not want to be a pred junkie anymore
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