Oh Janie- You are having a bad time. You were so sweet to answer to my thread thank you. Out of everything that happens to us its when we cant do the things we want to with the kids thats the worst. I have let mine down so many times lately but even though they understand its still horrible. I hope you feel better tomorrow and get to see Shrek, Its hilarious and mood lifting. I had a love hate relationship with Avara. It gave me terrible tummy problems but made me feel good in other ways, then after about a year it stopped working and the tummy troubles didnt seem worth it. I had a break from it, tried it again and was really sick with no relief. Strange how these things workThanks Lisa, I agree with you about the Arava, been there done that, stopped and started many times, can't see why things will be any better this time, heres hoping!! Thanks for answering, love Janie.
Holy Moly Janie an ESR of 48....that's high. No wonder you couldn't get out of bed. I'm sorry you're not feeling well and hope the Arava helps you. How old are your boys? Do they understand what is going on with Mommy? Wishing you well hon...take care.
Peace & Love...Neasy
Hi Neasy, thankyou for your support, my boys are very sensitive, age 10 and 6, they worry about me hugely and won't leave me when I am very bad, I have 10yr old sleeping next to my bed holding my hand until he falls to sleep and 6 y.o. wrapped around me in my bed! So gorgeous, hubby doesn't mind as I disturb him if he sleeps with me, what with my sleep apnoea machine, splints, constant moving around and unable to sleep, you get the picture, so yeah they do understand sometimes but not all the time. Love Janie.Awwww... you have WONDERFUL childeren!! I hope you all get to go to the movie tomorrow. Sounds like you could all use some fun time and laughs. I know how bad it must make you feel that they are disappointed but try to think of it this way....it gives them something to look forward to because you may not go today but YOU ARE GOING!!
Peace & Love...Neasy
Hi guys, update, today I have woken up worse than yesterday, I had to wear my neck brace in bed as I couldn't lift or turn my head without terrible pain, this morning though awful joint pain all over and my breast bone feels awful, it hurts to breathe and to touch it is excruciating, God knows why these flares happen, anyway, have to push the pred back up from 8mg to 10mg, just as I thought I was getting somewhere with the dreaded pred!!!!! Got a letter from the orthopaedic DR yesterday, he states that I have an awful triad of osteoporosis, obesity and inactivity due to pain, so more stress fractures are inevitable, I must lose weight or else!!!!! Tell me something I didn't know, sorry for venting, love Jane. Janie = vent away, I am. Actually read some news today about some progress on RA from the medical side, so maybe maybe maybe something will come out that can help your particular box of chocolate RA symptoms. I feel like Forrest Gump, RA. Take care and rest, we need you.Oh, Janie, I'm so sorry you are feeling so bad! When your doctor wrote you, did he offer any suggestions on how to go about losing the weight? I know how important that is, but with the pred, I understand it can be very difficult.
Your boys sound just precious. I know how hard it is to have to change plans with kids. They can be so sweet about it, but it is so hard to disappoint them. They sound like pretty understanding little guys, though.
My thoughts and prayers are with you. Feel better.
Gentle hugs,
Nini