Questio about Remicade | Arthritis Information

Howdy Texasmom,

Sorry to hear that you are not feeling better and you and your husband are having such a hard time understanding why.  First of all, know that all meds work differently on different people.  Some faster, some slower.  The last thing I want to be is discouraging to you but after 5 infusions I believe you should be getting some relief.  I myself and most people I know were feeling better after the 3rd infusion at least.  You didn't say how much Remicade you were getting, but your RD can increase your dosage.  Talk to your doc and let them know what's going on.  I truly hope you can get some relief soon.  Good luck!

Yes my doc is increasing my next does as well as increased methotrexate.  I had a long talk with my Rdoc the last time I was there, and he gave me the standard answers I have heard many times since I was dx 6 years ago.   Sometimes I don't think he can understand where I am coming from, he has all the teaxtbook knowledge but does not have the illness.  That is why thus place is so important to me, you all know what it feels like waking up everyday and dealing with ra.  I just have not been able to sleep for more than 4 hours at night for the past 3 nights and I am sure that makes everything feel that much worse.

Thank you all for listening/ reading me vent.

Robin

Your Dr can give you something to help you sleep at night. I take a pain pill and 2 muscle relaxers and that works great for me. RA can be a hard disease to get control of sometimes; I know I've been there. I have had arthritis for 20+ years and there have been times that I had nothing that would work for me. In 1998 I went for 4 months using prednisone and pain meds because MTX stopped working and I had taken everything else. I was in terrible shape, unable to do anything or leave the house. Enbrel was my savior. I used it with good success until recently. Now I am on Humira an beginning to feel better all the time. This disease is a matter of trial and error. Our Dr has to try and find the right combination that works for us as an individual. Those of us who have had this for sometime, have been on different combinations of drugs. On the plus side they are constantly coming out with new options for us. The drugs we take now mostly were not available to us that have have RA for sometime. There is always hope for us. It can be very hard on our families. It does make us change our lifestyles, but usually we find our we are strong enough to adjust. Just keep coming here and posting. We will all help in any way that we can.

Barb

Sweet dreams.