What to do for Nausea,? and always uggy | Arthritis Information

hi guys, this is a Whinge, as the brits would say, lol. a vent.

I'm soooooooooo frustrated!! really beyond.. 6 months of Humira, twice a month.. saw the Dr this wk, he took me off Predinose and MTx, gave me a shot of Cortisone.. but man I'm SICK..

ya know the RA flu, achy , whiney :P and nausous!! small throwups in my own mouth, aren't what i considerable enjoyable.. and i hate being nausauated , yes i can't spelll.. and i don't know if its Meat or what thats causing this.. Any help for this??

I need a hug, ok I'll be honest!!.. its soooooo hard for your healthy friends to get , when you're constantly sick, and I am usually really, a pretty optomistic person, but not being able to walk much, or never knowing how much is going to throw me, into pain. I just walk to the mailbox, every 2 days, and thats nuts!!.. but overdoing it, I'm not a maschocist for pain!! lol and it hasn't been worth it..when i have tried, even baby steps.

I tried swimming, lightly, threw me into a flare, I'm at my highest weight eVER.. ok.. i'm going to spit it out.. I'm over a 100 lbs overweight now.. yes, on the pred, i got the cravings and the lose-lose situation, of not being able to lose weight on it. The nausea comes and goes.. the DR said i was doing everything i was supposed to be doing.. taking the Humira and it was just a matter of adjusting the meds, doing more bloodwork and will see him again, in 3 wks. He's a really good dr and stays optomistic for me, lol.. but man..

it might be nice to have sex again and a bf, LOL, but if ya can't walk, you can't lose weight and if you have cravings.. viscious cycle.

Any suggestions, ideas?

This has worn me out!! You know what I mean??

Thanks all

Blessings and Joy~ its been 2 yrs now.. i think or 3.. i don't even want to know!!!

Dear Whispered, my gosh that is a lot of pain meds, isn't it? It would seem you would not be in agony. The prednisone does, indeed, make us crave food. I ate boxes of cocoa puffs the first time I took it and I've never eaten one before! I'm so sorry you are feeling so badly, I don't know about Humira and the throwing up....could it be the other pills also? If I took valium, darvocet and vicodin I wouldn't be able to get out of bed. Good luck sorting this all out and know we all suffer from the pred/eating attack. Lynda

Dear Whispered, I am so sorry that you are feeling this way, and know that we are all behind you. Humira can make you nauseous and even throw up. Did the Doc wean you off of the Pred or just take you off at 7.5mg. You can get very sick from not weaning off of the pred enough before stopping it.

Hang in there, and ask away. Why does the Doc not have you on Methotrexate???

Relax and go ahead and sleep if you can, because you do sound like you need to try to rest.

hi going to sleep!.. thanks shelly, I didn't know that about the Humira or pred.. so that helps explain a lot to me, this is a constant learning process isn't it? ugh.. lol and again ugh..

the dr took me off pred and Mtx..no weaning, just a cortisone shot..

lynda, yeah its a lot of pain meds, I try.. note try and use them pretty sparingly... except for the valium at night for sleep.

Vicodin actually makes me really depressed.. also bipolar and darvocet. makes me happy.. and its totally confusing, when to use which med.. I usually go for vicodin, if i'm hurting really bad.. but it doesn't knock me out at night.. shrug..

ra is just confusing and i'm happy you guys are here, even if haven't posted much.. i'm soo zombied out!! and not just from the meds.. lol..

thats whats confusing, bc even when i use the same combo.. sometimes, i get 4 hrs of sleep, other time 10.. its part of the oddball.. chemical imbalance of bipolar.. fun..

ok.. i'm off... i hope.. lol.. hugs to all..man i'm sick.. Lol

Whispered39292.0434722222You poor love, Whispered. This sounds like a bit of a vicious flare cycle that is spiraling out of control plus the doctor shifting around your meds. I wish I could say that there is a magical wand I could wave and it would all be over but the thing with this is you have to ride it out or as I prefer to call it, flow with it. Not easy when you just want it to go away but the more angry and upset you get with what is happening, the longer it will hang around remembering negative stress effects this disease greatly.

I so understand your fatigue and pain. I had uneducated people around me suggest that I should be walking etc and I'm trying not to spit on them and laugh at the same time because I'm thinking, "I'd just like to make it to the kettle to switch it on", lol.

And yep, when the fatigue is bad, I have not got my mail for two weeks! You are doing well compared to me, lol.

Look, weight goes on because of our meds but also because we can't be active as someone without RA can.

I want you to stop beating yourself up about the weight, right now, girl. The weight will be sorted as the RA is sorted but you are whacking yourself about it, don't...only make you feel worse.

And what I pick up from your post is you are starting to get really depressed from this flare which is what happens when our physical systems are flaring like this. This is a danger zone for depression, loss and grief. Try to access some counseling to help you untangle the emotions.

And I am single, have extra weight on for exactly the same reasons and I am dating actively. The right person will just care about you for who you are regardless of this disease or extra weight, this disease is part of you, so no giving up on that, okay? I found internet dating really good because I could do it without expending a lot of energy physically and it is really efficient.

Am glad your doctor is keeping an eye on you. Probably nothing else you can do but flow with this until it starts to lift.

I am on Humira but it has never made me nauseous but coming off Pred too fast could do that.

So sorry to read about your current state. Try and rest and as Cordelia says stop beating yourself up, and go with the flow. Here's the hugs for ya!!

Most of us have been where you're at, and it is not an easy road. I wish there was one quick and easy answer, but that's not the case. There were times when I was taking 40mg. of pred per day, which only made my state of mind worse. That, and the fact that I was severly overweight. I'd never feel full, which just made me eat more. I know it's hard not to feel down, but try to make it a point to have some routine to do everyday. We often surprise ourselves by rising to the occasion.

Is the doc going to do a liver profile on you or a biopsy? One of my docs was so insistent on a biopsy, yet the rheumy felt the blood test was sufficient. I wish you well.

I'm sorry to hear you are feeling so horrible. I've been feeling rather icky myself lately - with the nausea and all. This may sound silly, but I have found that laying on my left side relieves the nausea a bit, also sort of laying propped up with a pillow a bit on the left side. It's hard to explain, but if you can, try some different positions and see if it helps.

Also - some of the old standbys - I have been sipping on some diet ginger ale today and it seems to be sitting okay and helping my tummy calm down a bit. I don't know exactly what's up with the nausea - except that I tend to get it when I have a flare and I'm flaring right now.

Sending lots of positive energy your way. Hoping you feel a bit better soon. Please let us know how you are doing.

Jen