I have been fighting ra for probably 4 years only 1 year diagnosed
I am always soooo tired it seems like I get worn out just thinking bout doing things. then when I do get the energy up to accomplish something I am exhausted. My ra seems to be in flares about every other day or so depending on what I do. If i write alot my arms hands and shoulders hurt if I clean house I hurt from moving let alone being able to finish the job. I think I am just used to the pain bhecause it is just part of my everyday life I guess. I watched my father go through this diease and how bad it got although the meds have changed drastically since the 70s. He eventually was wheelchair bound and I feel died from the disease or its side effects. I do not look forward to going down the same road. some days are bearable others I can not literally get out of bed and I can feel it coming usually caused by emotional stress or over doing things. I dont know buit it is nice to find people who understand and dont think I am imagining things like my mother who says i should just learn to deal with it. my hubby understands but i feel he has withdrawn in somke ways so he can deal with the feeling of helplessness. On really bad days he beems to keep his distance as maybe it will help me handle the pain better but its exactly opposite of what it does. It only makes it worse. OH HELL thatnks for listenuing anyway
I understand and I feel the same way. I am always exhausted and hurt and some days its worse than others. What medications are you on? Look into a drug called Provigil, it does nothing to slow the disease, all it does is give you some energy and keep you awake. I find it helps me to get through the day.I understand just how your feeling. and unless person has experinced this type of challange / pain , they really don't understand.sit down and talk to your husband, don't hold anything back, explain to him how you feel and how his actions or distance from the issue makes you feel. Micheleb is correct, your Husband can't fix it, and it scares the hell out of him, he wants to tell you this - but is afraid that if he does so it could hurt you ( men are kinda like that- you know , that whole Venus and Mars thing! lol!!) so give him the chance to tell you how concerned and afraid he really is ( real men do cry!!) I grew up with PA ( and even if your 6ft tall, six pack and average looks- having 80% your skin covered -done it all from topicals to PUVA, aint no fun). Unfortunatly I also have Ankylosing Spondylitis with RA. Every day i kinda roll out of bed and spend about 30 min of working out, then i can standup straight. The pain can be pretty harsh at times. and for someone who worked as a Glaizer, handling large panels of glass for the last 35 years and being extremely active with my kids- it's really hard to accept what the near futrue holds. So Please, talk about it, have a good cry and hung each other really tight.
Always smile & never give up!
Leroy:)
All the things you are describing are part of what we deal with everyday. The fatigue, the crippling, the pain.