Me and Ariscowell | Arthritis Information

For me I did not care much to make friends with the "popular" kids at school, I saw them as against me, because even if I made friends with them, I was just a poor string along and they probably made more fun of me behind my back then they would if I had not befriended them. Probably why I do not like Brad Pitt, because everyone likes him.

JRA dictates your life, just like any other illness. It also gives you a certain mindset and once you have that enstilled in your mind, it is there, always. There is not much to change it.

And I would once again respectively like to point out that antibiotic therapy is an APPROVED DMARD.

But thanks for pointing out the Alternativies Therapies section. There's also a section on the front page for Juvenile Arthritis. But would you tell Katie, Joonie, or any of the other JRA's to "go for it?" I doubt it.

Again, why does it always come down to "us" against "them?"

Kiwi -

AP is NOT alternative - it's an approved ACR DMARD.  That put's us right smack in the middle of the RA board.  Since nobody suggests the diet and supplement people go there I think that kind of proves my point.  BTW - hugs, that was not intended to be adversarial; just a fact.

Jazzy -

Sorry if you're new and got hit with this.  My point is that hope is fragile and needs to be nurtured not slammed so that somebody can feel better about themselves.  Possibly in the future other less-hot-headed-types might post something along the lines of 'gee, so-and-so, that's dashing hope' so that they come to understand what they are doing.

Welcome to AI.

Pip

Well, since we are in our 20's it is no longer considered JRA, but RA now. But we have to claim our disease, which was/is JRA.

See, Katie and I really cannot relate that much to ya'll that have fallen ill with RA. It seems ya'll have different symptoms then we have or we have had symptoms none of you have had.

I visit this board to have someone who knows pain and can sorta relate to what I have and to do what my hubby cannot do, which is listen to my J/RA problems.

Oh I guess I can go to the JRA board, but who visits that board anyways? JRA board bound I am!

EXACTLY! I think most of us ARE here to talk with someone who can relate to what we're going through. Which is why I don't think anyone should be told to post on another board because of their treatment choice.

Like I said before, we're ALL in the same boat. Now why can't we ALL get along???

And btw...your 'true colors?' I see you as just plain ole' fun loving, entertaining, and caring joonie! 

Jasmin - not that kind of supplements. The cure all supplements.Oh.  I didn't know there were things out there that could cure everything! If there was, I'd be the first one to line up!  LOLUGH! No! I will be the first in line... like I was for the wedding cake! I have senority in the J/RA department so

Yep, I'm addicted...

Awww... I did not get left out... I feel the love...

*sings*

And can you feel the love tonight
It is where we are
It's enough for this wide-eyed wanderer
That we got this far
And can you feel the love tonight
How it's laid to rest
It's enough to make kings and vagabonds
Believe the very best

There's a time for everyone if they only learn
That the twisting kaleidoscope moves us all in turn
There's a rhyme and reason to the wild outdoors
When the heart of this star-crossed voyager beats in time with yours

Wow, this thread has grown.

This is quite off-topic, but I just wanted to apologize to Gimpy. For some reason, I've thought you were a man, and I know at least once on a thread that I referred to you as "him." My apologies!

Christina

And I would once again respectively like to point out that antibiotic therapy is an APPROVED DMARD.

But thanks for pointing out the Alternativies Therapies section. There's also a section on the front page for Juvenile Arthritis. But would you tell Katie, Joonie, or any of the other JRA's to "go for it?" I doubt it.

Again, why does it always come down to "us" against "them?"

I irritate you because you know I'm right.

And I pity you.

Pip

I'm sorry, but you seem really nasty in these posts.  I don't know the history between you and Katie, but apparently there is something I'm missing.  I just ask that you make your point with no name calling...it really is counterproductive. 

Phats

  I'm still learning about all the RA meds and therapy's because I want to be prepared for my Dr appt. I really appreciate all the posts with differences of opinions and first hand experiences.  I honestly haven't seen anyone diss someone else's alternatives. When someone has a remission we're all happy for them and it's only natural to want it to work as well for others. I don't think that is the real issue here.

There must be personal agendas and under lying reasons to attack each other so visciously. Why not wipe the slate clean and start all over?

 Yeah I take up for the "younguns" and love them dearly. I can't imagine to have had this disease for as long as I could remember like they have. Most of us had a "normal" lifestyle before this disease hit. They have never known "normal." Wanting to be different is way over rated. Ask them. To be as upbeat, cute, funny, and old beyond their years is a major victory in my book. They are compassionate and sweet. I've never heard one young person ask, why me?

 A good debate is always stimulating and fun. Bashing is rubbish!

Mona,

Very well said!!!

Phats

When did this become about me and my attitude? Oh wait... I remember I asked. Oh well.

Hey, I love my husband, but you do not live with him. He is not as darling as you think. He is childish, and wants to nuke EVERYONE! You would have to meet him, and have a conversation or 2 with him, and you will see he is not that caring, considerate or even sweet. I love him because he is just like me, except I am caring, considerate, and care about others. I am his concious, without me telling him that was rude or even mean, he would probably have gone postal on folks and been on the news nationwide as he was on a killing spree and threated to kill everyone in the world. Excpet his kids, me yeah, kids no, because they are a part of him. He really is like that evil joker that looks and seems nice, but then he has a dark side to him. I mean darker than mine. He has been told a many MANY of times he was pure evil and people were not laughing when they told him that either.

But I still love him, he treats me fair. We have loving names for each other, and mine seems to be "Titty baby, pop yo' mommas titty out yo mouth." or "Jackass". His is "Dumbass" and "Uncaring, egotistical, cold-hearted, Jackass." Yeah we get along just fine. We are each others ying and yang. We complete each other.

Oh and it might have something to do with I act like a "guy". Males for some reason do not see me as female, but male and treat me like a male. *shrugs shoulders*

Watching Wolf is on AP?????

Pip

yeah, that is some new FYI, for me too, Pip!

Glad it works for ya, watchingwolf. I guess you did not get ran off the board, you just left because you felt better, and I am happy that you are better.

I honestly have never seen Katie attack ANYONE. She'll come back if someone jumps on her, but I would do the same thing.

I've only seen her have a really bad day one time, or at least that we know about, and that was when Justin's Mom was dealing with her cancer.

Gimpy and Pip, I just really don't understand how you can be so sweet and caring to most people, then sometimes just go off. I'm sorry, but I really don't get it.

Katie, for the record, I really think their opinions are in the minority. I think you know how much I care about you. You, too, Joonie. In fact, I really care about everyone here, but it's getting harder and harder to be neutral, when you see someone picked on out of the blue.

I sure wish this hadn't started again. It's counterproductive and downright boring.

Ok... I must admit... I do not reply to a lot of posts because of all the big words that are being used. If it is not in "stupid people" terms, it goes over my head, and I just do not feel like breaking out the dictionary every few words to see what the hell it means.

Now aren't you guys glad I do not give my opinions? I mean I can come up with some doozes, not that I would have scientific facts and proven theories that my opinion is correct.... as in my MIND it is correct.

Just like Elvis is on vacation in Hawaii and not dead. Long live the King! *bows* I'm not worthy!! I'm not worthy!!

Edited - because my brain rejected what I wanted to say.

Joonie,

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Well said for a "stupid person"!!!!!!! WHAT IS GOING ON, SUPPORT PEOPLE - SUPPORT, COME ON GUYS - HERES HOPING, JANIE.

Hi guys,

Let me start this by saying that this is not directed at anyone at all.   I have had JRA all my life.  I have never been on anything more than Naproxen and Plaquenil.  I have hit a point where I may need more.  I appreciate all the information that I get from this board.  I don't care what it is.  Give it all because I need to know this before I see my new RD.  I like to be informed.  I also see that all of you are a very supportive and caring group of people.  I have received kind words and welcomes from ALL of you.  Thank you for that. People are wonderful in that no two people see everything the same way.  This is great because it allows us to learn from each others experiences.  I believe that life is a learning process and if we are open to the teaching, great things can come out of it.  We all share RA.  Some have it better, some worse but we all have it.  Supporting each other as only other people with the same issue can do is essential. 

It seems that there are caring people with very strong opinions.  That's okay and even healthy to debate over the good and evils of different forms of therapy for this.  What's unhealthy is the name calling.  Not necessary either.  I think that maybe it's time to just agree to disagree and get on with it.  Katie, let Pip and Gimpy post their opinions on AP therapy and Pip and Gimpy , let Katie post her opinions on traditional RA meds.  And both, let them do this without name calling and rudeness. How I placed the names above doesn't indicate that I have a side.  I know nothing about either of your viewpoints so can't make a choice which a prefer.  I feel that words need to be chosen more carefully in responses.  Remember that when writing something, the person receiving it can't see your face so they don't know the true intention of your comment.  Good and valid points or opinions can be overlooked based on how they are posted.

Katie, Pip and Gimpy:  You all have wonderful points about RA and are all contribute in positive ways to this board most of the time. 

Gimpy, you post some of the most informative articles. They're very helpful.  Thank you, Gimpy.  

Pip, you are a friendly and knowledgeable person. I enjoy reading your posts for the information I get.   Thank you Pip.

 Katie, you have the best outlook on RA that I've seen.  Aside from mine, of course.  Just joking. I've had many laughs from your posts which I needed.  Thank you Katie.

 I like all of you for what you bring to this board.  I just wish that you were be kinder to each other.  Someone has to take the first step.  As a last suggestion, read what you write before you hit "Post Reply".

Steph -

Point taken.

Pip

I am so confused by all this. I don't post much but am on here reading everyday. I always thought Katies posts were fun and easy and she seems super nice. I think we all need to adjust how we read the posts and remember that we put the tone into them by the way we read them. I have always seen her posts as fun to read and usually makes me giggle. I don't think I have ever read anything until this thread that was mean spirited at all. Thats my two cents anyway. A message can be interpreted many different ways and if you are wanting someone to be negative you can always turn it that way even if it was not intended.

PS I am not putting anyone down don't take this the wrong way

Gimpy is a wonderful person who had insights into a treatment that many people are interested in, that may actually be effective for some people with RA.  She tried to reasonably get Katie to leave her alone.  Katie used it as a call for all of her cronies to come stand up for her and now Gimpy is gone.  It is your loss.

My mailbox filled with support from people for my post about the immature attacks that go on now at AI.

Nini;  You and I have always got along.  If you don't know one mean thing Katie has wrote, go to the thread that I was chased off this board, Bash Roxy Thread, Have fun.  That is what she did.  She had a great time attacking me when I was dealing with some of the hardest times of my life.  I was being attacked for being a bad mother.  How many of you mothers would not be hurt by that.  Yes, she was successful with her cronies to drive me off this board.  But I wish some of you would open your eyes and see how many people have left and been hurt by this bashing on very vulnerable people.  My life is good now.  Humira is working for me but what was done to me here was beyond horrible.  It is hard to watch others go through similar attacks.  Yes, I will come back to read posts and check my PMs.  I am not CRAWLING BACK.  This board has nothing to offer me any longer but because of what happened to me, I will not sit back and not say anything when other vulnerable people are attacked.  Many people are afraid to say anything as they need this board.  They need the support and have not been victim yet to these attacks.  They do not post against these attacks, as they are afraid they will lose the only support they have.  I have absolutely nothing to lose.  There is no support here for me.

Oh Roxy, you know, I hope, that I've always cared about you! And I think I made it clear when the "Bash Roxy" thread was going on, just how cruel I thought it was. And at that time, it did seem like everyone was jumping on the bandwagon.

The only thing I'm trying to get across, now, is that we don't need to be starting threads, with the sole purpose of arguing with someone. The only purpose it serves it to start the bickering all over again.

There are many people here from many different backgrounds, with varied beliefs, and experience in dealing with our health issues, in particular, RA. Of course there are going to be some disagreements about which is best. However, wouldn't it be cool if we could discuss them like adults? We don't have to agree with each other, but this fighting among ourselves is defeating our purpose of being here.

How about a healthy discussion once in a while? Or just share what helps us and let the others decide for themselves?

But to start a thread about an argument between oneself and another is poor use of this board, in my opinion.

I'm sorry if I offended you, Roxy. I honestly am. I think about you often and hope you are doing well. You were treated very unfairly. I just hate to see that happen to someone else.

Be well!

Nini

Nini;  You and I have always got along.  If you don't know one mean thing Katie has wrote, go to the thread that I was chased off this board, Bash Roxy Thread, Have fun.  That is what she did.  She had a great time attacking me when I was dealing with some of the hardest times of my life.  I was being attacked for being a bad mother.  How many of you mothers would not be hurt by that. 

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Oh we are going to go there now?.... How about the time when I was just trying to keep the peace on another board, that I moderated, and your drunk, doped up ass, decided you were going to call me and I quote....

neglectful mother and wife

Wanna keep dredging up the past? I can help with that. I can show where you posting about your everyday life has ruined not only this board, but another board that was full of life, compassionate people, all while being fun and informative all at the same time, and yet you could not help yourself in pitting people against people. You liked to be the center of attention and when you did not get that attention or they did not post what you wanted to hear you would make them the enemy, just like you are doing now. Most of us tried to coddle you and help you, but there is no helping someone who does not what help, but to be the center of attention.

Just go back to the support board you came from and stay there. I mean I would hate it if someone joined the board you are an active member of now and post rude nasty truths about ya, entitled "BEWARE of Roxy", now wouldn't we? Yeah, do not worry, I will not harass you. I know they got my IP addy, and You are not worth my energy to show them they will get tired of your crap and the board will be divided into "Roxy fanclub" and "Tired of Roxy's Crap".

Now run along and leave. I have lost enough friends because of you and if I lose anymore I will hunt you down and make your cyber life misrable.

*swipes RuePaul off her shoulder*

That is all I have to say and I did not want to say get into this post, but you are playing the victim again. Just stop! You allowed yourself to be a victim because you gave out way too much ammo. Now suffer. I did, but at least I learned from the mistake, but with you it is like a coo coo clock... over and over and over again.

My cyber friends mean a lot to me. As I do not have any friends in my area. It is not because I am unfriendly or anything, it is that I am a home body and choose not to have that kind of stress in my life. I like my internet friends they are in abundance and usually someone is online when I need to talk or just to shoot the breeze.

Yes, I am pathetic, but not as pathetic as some folks.... Case in point. *Look...over there*

I have lost enough friends because of you and if I lose anymore I will hunt you down and make your cyber life misrable.

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Oh come now Joonie...you and everyone else who's been here for a long time KNOWS that isn't true.  I believe there was some bad behaviour on your part in other things that casued you to lose friends.  Nothing Roxy did caused that...it was all you baby!

Most here that are your "friends" don't even know the real you yet and I'm sure you'll do your best so that they don't.....I sure hope so anyway.

Joonie, any of the frieds that you have "lost" are not people that you want as your friends.  Just when things started getting back to normal this has to start again..

*makes popcorn*

The real me, well if you are feeling froggie feel free to tell them just the real me is. I have always been who I am in real life minus letting my depression show thru, but every once in awhile people get a glimps of that.

And yes, it was mostly roxy's fault, as she drove most of them away just like she did this time as well. Because they all got tired of her crap.

I lost Hula, but that was not all roxy's fault, but of someone else's doing. I lost Dave. I lost a good bit and they were all ran off by roxy. A lot you do not know, huh kelly.